Christine E. Lynn College of Nursing, Florida Atlantic University, Boca Raton, FL, USA.
University of Florida, Gainesville, FL, USA.
J Clin Nurs. 2021 Jan;30(1-2):229-238. doi: 10.1111/jocn.15542. Epub 2020 Nov 10.
To describe the health challenge for mothers whose infants have died and approaches and resources they used to manage the loss.
The death of an infant is a devastating experience for families. Bereaved mothers have higher rates of mental distress, loneliness and isolation. While some learn to cope, others remain consumed by grief, unable to function, with persistent affective, cognitive and physical symptoms.
Qualitative design guided by story theory.
In-depth, semi-structured interviews were conducted with mothers 13-36 months after the death of their infant. Looking at the present, past and future, mothers were asked to describe the health challenge of losing an infant and approaches used to manage the loss. The COREQ checklist was used.
These mothers' experiences were captured in six main themes: 'Painful aloneness', 'Blemished identity', 'Burden of being misunderstood', 'Being with and being heard', 'Being present and building a future' and 'Finding meaning in the tragedy'. In sharing their stories, mothers identified positive and negative encounters with healthcare professionals following the death of their infant.
After losing an infant, mothers experience an array of challenges as they move forward. They describe their approaches used to manage the loss. This included a need to be heard, feel supported and find meaning in the loss as they try to build a new future. Their stories express a need for health care encounters to be healing, allowing mothers to feel cared for and supported on their unique journeys towards a new sense of well-being.
In sharing their stories what matters most to these mothers having lost an infant emerged. The study findings can be used to guide nursing practice, incorporated into healthcare providers bereavement training, increase knowledge and build effective communication skills.
描述婴儿死亡后母亲所面临的健康挑战，以及她们用来应对这种损失的方法和资源。
婴儿死亡对家庭来说是一个毁灭性的经历。失去孩子的母亲有更高的精神困扰、孤独和孤立的比率。虽然有些人学会了应对，但有些人仍然被悲伤所吞噬，无法正常生活，持续存在情感、认知和身体症状。
以故事理论为指导的定性设计。
对婴儿死亡 13-36 个月后的母亲进行深入的半结构化访谈。通过回顾过去、现在和未来，母亲们被要求描述失去婴儿的健康挑战以及用于管理这种损失的方法。使用了 COREQ 清单。
这些母亲的经历可以概括为六个主要主题：“痛苦的孤独”、“有缺陷的身份”、“被误解的负担”、“陪伴和倾听”、“活在当下并建立未来”和“在悲剧中寻找意义”。在分享她们的故事时，母亲们描述了她们在失去婴儿后与医疗保健专业人员的积极和消极接触。
失去婴儿后，母亲们在前进的过程中会经历一系列的挑战。她们描述了自己用来应对这种损失的方法。这包括需要被倾听、感到支持，并在努力建立新未来的过程中找到失去的意义。她们的故事表达了对医疗保健接触的需求，这种接触应该是治愈性的，让母亲们在她们独特的走向新的幸福感的旅程中感到被关怀和支持。
通过分享她们的故事，失去婴儿的母亲们最关心的事情浮现出来。研究结果可以用于指导护理实践，纳入医疗保健提供者的丧亲培训中，增加知识并建立有效的沟通技巧。
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