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丧亲父母在癌症患儿夭折后的体验:定性整合研究。

The Experiences of Bereaved Parents After the Loss of a Child to Cancer: A Qualitative Metasynthesis.

机构信息

University of São Paulo at Ribeirão Preto College of Nursing, Ribeirão Preto, São Paulo, Brazil.

Université du Québec en Outaouais, Gatineau, Quebec, Canada.

出版信息

J Pediatr Oncol Nurs. 2020 Nov/Dec;37(6):444-457. doi: 10.1177/1043454220944059. Epub 2020 Jul 27.

DOI:10.1177/1043454220944059
PMID:32715930
Abstract

This study aims to synthesize qualitative evidence about the bereavement experience of parents following the death of a child due to cancer. A qualitative metasynthesis was conducted from searching five databases. The search identified 650 articles that were independently assessed by two reviewers. Thirty-one articles were selected for full-text reading and assessed for eligibility; a total of 14 articles were included in the final sample and submitted to quality appraisal. The software NVivo® was used to organize the data and support the thematic analysis procedures. Two analytical themes were constructed: (1) losing a child and facing a rupture in identity and sense of life and (2) surviving grief and reengaging in life. The grief process was dynamic, continuous, and begun before the death of the child. Fathers and mothers reacted differently to the loss and experience of grief. The loss of a child definitively changed the parents' life and caused identity crisis and loss of life's purpose. During the process of survival, parents constructed new meanings that helped them cope with grief; they used strategies that allowed them to recover their sense of purpose in life. Synthesizing the experience of bereaved parents is essential to improve the support families of children with advanced cancer receive to better cope with their suffering and loss, before and after the child's death.

摘要

本研究旨在综合定性证据,了解因癌症而失去孩子的父母的丧亲之痛。采用定性元分析方法,从五个数据库中进行搜索。搜索共确定了 650 篇文章,由两位评审员独立进行评估。有 31 篇文章被选中进行全文阅读和合格性评估;最终共有 14 篇文章被纳入最终样本并进行质量评估。使用 NVivo®软件对数据进行组织,并支持主题分析程序。构建了两个分析主题:(1)失去孩子和面临身份认同和生活意义的破裂;(2)在悲痛中幸存和重新投入生活。悲痛过程是动态的、持续的,并且在孩子去世之前就已经开始。父亲和母亲对失去孩子的反应不同,对悲痛的体验也不同。失去孩子确实改变了父母的生活,导致身份危机和生活意义的丧失。在生存过程中,父母构建了新的意义,帮助他们应对悲痛;他们使用策略来恢复生活的目标感。综合丧亲父母的体验对于改善晚期癌症患儿家庭的支持至关重要,以帮助他们在孩子去世前和去世后更好地应对痛苦和丧失。

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J Pediatr Oncol Nurs. 2020 Nov/Dec;37(6):444-457. doi: 10.1177/1043454220944059. Epub 2020 Jul 27.
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