掌控我们的健康：晚期癌症青年患者所感受到的自主权。
Taking control over our health: Empowerment as perceived by young adults living with advanced cancer.
作者信息
Garland Rosalind, Ahmed Saima, Loiselle Carmen G
机构信息
Medical Surgical Intensive Care Unit, Jewish General Hospital, Montreal, QC,
Division of Experimental Medicine, McGill University, Montreal, QC,
出版信息
Can Oncol Nurs J. 2020 Apr 1;30(2):93-102. doi: 10.5737/2368807630293102. eCollection 2020 Spring.
BACKGROUND
Health-related empowerment is a key concept in person-centred care. However, little is known of its core elements in young adults diagnosed with advanced cancer.
OBJECTIVE
To explore empowerment in the context of young adults' healthcare experiences who are now in advanced stages of cancer.
SETTING & PARTICIPANTS: Twelve young adults (aged 21 to 39 years) were recruited from a large cancer centre in Montreal, Quebec.
METHODS
In-depth interviews lasting between 36 and 90 minutes were conducted individually, audio-recorded, transcribed verbatim, and analyzed using thematic analysis.
RESULTS
Throughout the cancer trajectory, participants reported a sustained desire to be actively involved in their treatment and care. Four themes emerged from the data representing processes of waiting, managing, acting, and revisiting. Subsumed under these were notions of body ownership, facing obstacles to care, optimizing health, and (re)considering their legacy.
CONCLUSIONS
Overall, participants wanted to remain in control of their situation despite the multiple challenges related to advanced cancer. If corroborated further, these findings should inform supportive cancer care approaches that are truly tailored to the needs of young adults.
背景
与健康相关的赋权是以人为本的医疗护理中的一个关键概念。然而，对于被诊断患有晚期癌症的年轻人而言，其核心要素却鲜为人知。
目的
探讨处于癌症晚期的年轻人在医疗经历中的赋权情况。
地点与参与者
从魁北克省蒙特利尔市的一家大型癌症中心招募了12名年轻人（年龄在21至39岁之间）。
方法
进行了时长在36至90分钟之间的个人深度访谈，进行了录音，逐字转录，并采用主题分析法进行分析。
结果
在整个癌症病程中，参与者表示持续渴望积极参与自身的治疗和护理。数据中出现了四个主题，分别代表等待、应对、行动和反思的过程。这些主题之下包含身体所有权、面临护理障碍、优化健康以及（重新）考虑自身遗产等概念。
结论
总体而言，尽管面临与晚期癌症相关的多重挑战，参与者仍希望掌控自己的状况。如果进一步得到证实，这些发现应为真正符合年轻人需求的支持性癌症护理方法提供参考。
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