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探索住院患者同伴支持工具的设计:成年患者的观点

Exploring the Design of an Inpatient Peer Support Tool: Views of Adult Patients.

作者信息

Haldar Shefali, Mishra Sonali R, Khelifi Maher, Pollack Ari H, Pratt Wanda

机构信息

University of Washington, Seattle, WA.

Seattle Children's Hospital, Seattle, WA.

出版信息

AMIA Annu Symp Proc. 2018 Dec 5;2018:1282-1291. eCollection 2018.

PMID:30815170
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6371245/
Abstract

Despite wide recognition of the value, expertise, and support that patient-peers provide in a variety of health contexts, mechanisms to design and enable peer support in the inpatient setting have not been sufficiently explored. To better understand the opportunities for an inpatient peer support tool, we surveyed 100 adult patients and caregivers, and conducted follow-up, semi-structured interviews with 15 adult patients. In this paper, we describe five key peer support needs that our adult patient participants expressed: (1) adjusting to the hospital environment, (2) understanding and normalizing medical care, (3) communicating with providers, (4) reporting and preventing medical errors, and (5) empowering peers. In addition, we identify privacy concerns, situational impairments, and communication mode as barriers to, and preferences for, interacting with peers. Based on our findings, we discuss intelligent peer matching and aggregating peer data as design recommendations for future inpatient peer support tools.

摘要

尽管患者同伴在各种健康环境中所提供的价值、专业知识和支持已得到广泛认可,但在住院环境中设计并实现同伴支持的机制尚未得到充分探索。为了更好地了解住院患者同伴支持工具的机遇,我们对100名成年患者和护理人员进行了调查,并对15名成年患者进行了后续的半结构化访谈。在本文中,我们描述了成年患者参与者表达的五个关键同伴支持需求:(1)适应医院环境;(2)理解医疗护理并使其正常化;(3)与医护人员沟通;(4)报告并预防医疗差错;(5)赋予同伴力量。此外,我们确定了隐私问题、情境障碍和沟通方式是与同伴互动的障碍及偏好。基于我们的研究结果,我们讨论了智能同伴匹配和汇总同伴数据,作为未来住院患者同伴支持工具的设计建议。

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本文引用的文献

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Understanding Patient Questions about their Medical Records in an Online Health Forum: Opportunity for Patient Portal Design.理解在线健康论坛中患者关于其病历的问题:患者门户设计的机遇
AMIA Annu Symp Proc. 2018 Apr 16;2017:1468-1477. eCollection 2017.
2
Opportunities and Design Considerations for Peer Support in a Hospital Setting.医院环境中同伴支持的机遇与设计考量
Proc SIGCHI Conf Hum Factor Comput Syst. 2017 May;2017:867-879. doi: 10.1145/3025453.3026040.
3
Implementation of acute care patient portals: recommendations on utility and use from six early adopters.急性护理患者门户的实施:六位早期采用者关于实用性和使用的建议。
J Am Med Inform Assoc. 2018 Apr 1;25(4):370-379. doi: 10.1093/jamia/ocx074.
4
An informatics research agenda to support patient and family empowerment and engagement in care and recovery during and after hospitalization.支持患者和家属在住院期间和出院后赋权并参与护理和康复的信息学研究议程。
J Am Med Inform Assoc. 2018 Feb 1;25(2):206-209. doi: 10.1093/jamia/ocx054.
5
"Not Just a Receiver": Understanding Patient Behavior in the Hospital Environment.“不仅仅是接受者”:理解医院环境中的患者行为
Proc SIGCHI Conf Hum Factor Comput Syst. 2016 May 7;2016:3103-3114. doi: 10.1145/2858036.2858167.
6
Bursting the Information Bubble: Identifying Opportunities for Pediatric Patient-Centered Technology.打破信息泡沫:识别以儿科患者为中心的技术机会。
AMIA Annu Symp Proc. 2017 Feb 10;2016:894-903. eCollection 2016.
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"Scared to go to the Hospital": Inpatient Experiences with Undesirable Events.“害怕去医院”:住院患者对不良事件的体验
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