Couchoud Cecile, Gharbi Mohamed Benghanem
REIN Registry, Agence de la biomédecine, Saint Denis La Plaine, France.
Nephrology Department, Faculty of Medicine, University Hassan II, Casablanca, Morocco.
Clin Kidney J. 2020 Jul 29;13(5):742-744. doi: 10.1093/ckj/sfaa067. eCollection 2020 Oct.
The paper by Jardine . reporting results from the South African Renal Registry describes a 2-fold success. First, even in a limited-resource environment, survival of patients on renal replacement therapy (RRT) is favourable. Secondly, this information is available because a few years ago, South African nephrologists started a renal registry. These successes cannot conceal, however, that numerous patients are not offered RRT. Robust health information systems make it possible to define chronic kidney disease and end-stage kidney disease (ESKD) burdens, guide resource allocation, inform service planning and enable policy. Registries can highlight inequitable RRT access and help support advocacy in favour of additional resources for ESKD care.
贾丁的论文报告了南非肾脏登记处的结果，描述了两方面的成功。首先，即使在资源有限的环境中，接受肾脏替代治疗（RRT）的患者的存活率也很高。其次，之所以能获得这些信息，是因为几年前南非肾病学家启动了一个肾脏登记处。然而，这些成功并不能掩盖众多患者未得到RRT治疗的事实。强大的健康信息系统有助于界定慢性肾脏病和终末期肾病（ESKD）的负担，指导资源分配，为服务规划提供信息并推动政策制定。登记处可以突出RRT获取方面的不公平现象，并有助于支持倡导为ESKD护理争取更多资源。
