See Emily J, Alrukhaimi Mona, Ashuntantang Gloria E, Bello Aminu K, Bellorin-Font Ezequiel, Benghanem Gharbi Mohammed, Braam Branko, Feehally John, Harris David C, Jha Vivekanand, Jindal Kailash, Kalantar-Zadeh Kamyar, Kazancioglu Rumeyza, Levin Adeera, Lunney Meaghan, Okpechi Ikechi G, Olanrewaju Timothy Olusegun, Osman Mohamed A, Perl Jeffrey, Qarni Bilal, Rashid Harun Ur, Rateb Ahmed, Rondeau Eric, Samimi Arian, Sikosana Majid L N, Sola Laura, Tchokhonelidze Irma, Wiebe Natasha, Yang Chih-Wei, Ye Feng, Zemchenkov Alexander, Zhao Ming-Hui, Johnson David W
Department of Nephrology, Metro South and Ipswich Nephrology and Transplant Services (MINTS), Princess Alexandra Hospital, Brisbane, Australia.
Department of Medicine, Dubai Medical College, Dubai, United Arab Emirates.
Kidney Int Suppl (2011). 2018 Feb;8(2):74-81. doi: 10.1016/j.kisu.2017.10.011. Epub 2018 Jan 19.
Development and planning of health care services requires robust health information systems to define the burden of disease, inform policy development, and identify opportunities to improve service provision. The global coverage of kidney disease health information systems has not been well reported, despite their potential to enhance care. As part of the Global Kidney Health Atlas, a cross-sectional survey conducted by the International Society of Nephrology, data were collected from 117 United Nations member states on the coverage and scope of kidney disease health information systems and surveillance practices. Dialysis and transplant registries were more common in high-income countries. Few countries reported having nondialysis chronic kidney disease and acute kidney injury registries. Although 62% of countries overall could estimate their prevalence of chronic kidney disease, less than 24% of low-income countries had access to the same data. Almost all countries offered chronic kidney disease testing to patients with diabetes and hypertension, but few to high-risk ethnic groups. Two-thirds of countries were unable to determine their burden of acute kidney injury. Given the substantial heterogeneity in the availability of health information systems, especially in low-income countries and across nondialysis chronic kidney disease and acute kidney injury, a global framework for prioritizing development of these systems in areas of greatest need is warranted.
医疗保健服务的发展与规划需要强大的健康信息系统，以界定疾病负担、为政策制定提供信息，并确定改善服务提供的机会。尽管肾脏疾病健康信息系统有改善医疗服务的潜力，但其全球覆盖情况尚未得到充分报道。作为国际肾脏病学会开展的一项横断面调查——《全球肾脏健康地图集》的一部分，从117个联合国成员国收集了关于肾脏疾病健康信息系统的覆盖范围、范畴及监测实践的数据。透析和移植登记在高收入国家更为常见。很少有国家报告拥有非透析慢性肾脏病和急性肾损伤登记。虽然总体上62%的国家能够估算其慢性肾脏病患病率，但只有不到24%的低收入国家能获取这些数据。几乎所有国家都为糖尿病和高血压患者提供慢性肾脏病检测，但很少为高危种族群体提供。三分之二的国家无法确定其急性肾损伤负担。鉴于健康信息系统的可获取性存在很大差异，尤其是在低收入国家以及非透析慢性肾脏病和急性肾损伤方面，有必要制定一个全球框架，以便在最需要的领域优先发展这些系统。
