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本文引用的文献

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The Society of Thoracic Surgeons National Database 2019 Annual Report.《胸外科医师学会国家数据库 2019 年度报告》。
Ann Thorac Surg. 2019 Dec;108(6):1625-1632. doi: 10.1016/j.athoracsur.2019.09.034. Epub 2019 Oct 22.
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Role of Big Data in Cardiovascular Research.大数据在心血管研究中的作用。
J Am Heart Assoc. 2019 Jul 16;8(14):e012791. doi: 10.1161/JAHA.119.012791. Epub 2019 Jul 11.
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Public Reporting III: Improving the Value of Public Physician Quality Information.
Circulation. 2018 May 29;137(22):2318-2320. doi: 10.1161/CIRCULATIONAHA.117.026554.
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Challenges of Assessing Therapeutic or Diagnostic Outcomes with Observational Data.利用观察性数据评估治疗或诊断结果的挑战。
Am J Med. 2018 Feb;131(2):206-210. doi: 10.1016/j.amjmed.2017.10.027. Epub 2017 Dec 11.
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The Hospital Readmission Reduction Program Is Associated With Fewer Readmissions, More Deaths: Time to Reconsider.医院再入院减少计划与再入院次数减少、死亡人数增加相关:是时候重新考虑了。
J Am Coll Cardiol. 2017 Oct 10;70(15):1931-1934. doi: 10.1016/j.jacc.2017.08.046.
6
Public Reporting II: State of the Art-Current Public Reporting in Cardiovascular Medicine.公共报告II:心血管医学领域的最新技术——当前的公共报告
Circulation. 2017 May 9;135(19):1772-1774. doi: 10.1161/CIRCULATIONAHA.117.026553.
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2016 Annual Report of The Society of Thoracic Surgeons/American College of Cardiology Transcatheter Valve Therapy Registry.2016 年胸外科医师学会/美国心脏病学会经导管瓣膜治疗注册中心年度报告。
J Am Coll Cardiol. 2017 Mar 14;69(10):1215-1230. doi: 10.1016/j.jacc.2016.11.033. Epub 2016 Dec 9.
8
Cardiovascular Registries: Too Much of Good Thing?心血管登记系统:好事过头了?
Circ Cardiovasc Interv. 2016 Apr;9(4):e003866. doi: 10.1161/CIRCINTERVENTIONS.116.003866.
9
SMART on FHIR: a standards-based, interoperable apps platform for electronic health records.基于快速医疗互操作性资源的智能医疗:一个用于电子健康记录的基于标准的、可互操作的应用程序平台。
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10
ACC/AHA/STS Statement on the Future of Registries and the Performance Measurement Enterprise: A Report of the American College of Cardiology/American Heart Association Task Force on Performance Measures and The Society of Thoracic Surgeons.美国心脏病学会/美国心脏协会/胸外科医师协会关于注册登记与绩效评估事业未来的声明:美国心脏病学会/美国心脏协会绩效评估特别工作组及胸外科医师协会报告
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国家登记处对改善心血管疾病护理质量及治疗结果的作用。

The Role of National Registries in Improving Quality of Care and Outcomes for Cardiovascular Disease.

作者信息

Meltzer Seth N, Weintraub William S

机构信息

MEDSTAR HEART AND VASCULAR INSTITUTE, WASHINGTON, DC.

出版信息

Methodist Debakey Cardiovasc J. 2020 Jul-Sep;16(3):205-211. doi: 10.14797/mdcj-16-3-205.

DOI:10.14797/mdcj-16-3-205
PMID:33133356
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7587311/
Abstract

Cardiovascular registries play an integral role in providing real-world data on a number of cardiovascular conditions and allowing measurement of quality metrics across a large cohort of patients. Over the past 35 years, the number of cardiovascular registries has skyrocketed, and their use will only continue to grow as data on novel procedures and devices will need to be collected and analyzed. The American College of Cardiology and Society of Thoracic Surgeons Transcatheter Valve Therapy Registry is just one example of a modern registry that plays a crucial role in collecting data on patients undergoing transcatheter valvular procedures. Through public reporting registries, data can be shared on a hospital and provider level for many quality performance measures. There remains much work to be done on allowing automated data extraction from the electronic medical record directly into registries. No matter how sophisticated and complete a registry is, it can never overcome the problem of treatment selection bias that is inherent in observational data. This review discusses the growth, benefits, and limitations of national registries and their role in developing evidence for best clinical practice, measuring outcomes, providing feedback to clinicians, and improving quality of care.

摘要

心血管注册登记在提供多种心血管疾病的真实世界数据以及对大量患者群体的质量指标进行测量方面发挥着不可或缺的作用。在过去35年里,心血管注册登记的数量急剧增加,而且随着新型手术和器械数据需要收集和分析,其应用只会持续增长。美国心脏病学会和胸外科医师学会经导管瓣膜治疗注册登记只是现代注册登记的一个例子,它在收集接受经导管瓣膜手术患者的数据方面发挥着关键作用。通过公开报告注册登记,许多质量绩效指标的数据可以在医院和医疗服务提供者层面共享。在实现从电子病历直接自动提取数据到注册登记方面仍有许多工作要做。无论注册登记多么复杂和完善,它都无法克服观察性数据中固有的治疗选择偏倚问题。本综述讨论了国家注册登记的发展、益处和局限性,以及它们在为最佳临床实践提供证据、测量结果、向临床医生提供反馈和提高医疗质量方面的作用。