Graduate Program in Genetic Counseling, University of Utah, Salt Lake City, UT, USA.
ARUP Laboratories, Salt Lake City, UT, USA.
J Genet Couns. 2021 Apr;30(2):606-615. doi: 10.1002/jgc4.1349. Epub 2020 Nov 1.
Expanded carrier screening (ECS) is increasingly offered to a broader population and raises challenges of how to best educate and counsel the volume of screened individuals. For this study, we compared three educational tools (brochure, video and comic) about ECS on knowledge and decision making. A convenience online sample of 151 pregnant women was randomized to one of three groups (Video, n = 42; Comic n = 54; Brochure n = 55). Knowledge scores were significantly higher for the comic group compared to the video or the brochure groups (p < .001). No significant differences in preparation for decision making, decisional conflict, or perceptions of shared decision making were identified between the study groups. This study suggests that a comic about ECS may improve patient attention and retention of information. The use of graphic narratives may enable individuals to better understand medical information in general.
扩展携带者筛查 (ECS) 越来越多地向更广泛的人群提供,这就提出了如何最好地教育和咨询大量接受筛查的个体的问题。在这项研究中,我们比较了三种关于 ECS 的教育工具(手册、视频和漫画)在知识和决策方面的效果。我们随机抽取了 151 名孕妇作为便利的在线样本,将其分为三组(视频组 n = 42;漫画组 n = 54;手册组 n = 55)。与视频组或手册组相比,漫画组的知识得分显著更高(p <.001)。研究组之间在决策准备、决策冲突或共同决策的看法方面没有发现显著差异。本研究表明,关于 ECS 的漫画可能会提高患者对信息的关注和保留。使用图形叙事可能使个人能够更好地理解一般的医疗信息。