Gustavus Adolphus College, 800 College Avenue West, Saint Peter, MN, 56082, USA.
Karolinska Institutet Center of Neurodevelopmental Disorders (KIND), Stockholm, Sweden.
J Autism Dev Disord. 2021 Sep;51(9):3073-3084. doi: 10.1007/s10803-020-04765-0. Epub 2020 Nov 2.
Autism spectrum disorder (ASD) affects 1:59 children, yet little is known about parents' perceptions of family-centered care (FCC) during the diagnostic process leading up to diagnosis. This mixed-methods study explored key elements of FCC from 31 parents of children recently diagnosed with ASD using parallel qualitative and quantitative measures. Parents rated highly their receipt of FCC and discussed ways providers demonstrated FCC. However, the majority of parents indicated that the period when their child was undergoing diagnosis was stressful and reported symptoms of depression and anxiety. The study points to ways in which health care providers can enhance FCC provided to families when a child is undergoing ASD diagnosis.
自闭症谱系障碍（ASD）影响 1:59 的儿童，但在导致诊断的诊断过程中，父母对以家庭为中心的护理（FCC）的看法知之甚少。这项混合方法研究使用平行的定性和定量措施，从 31 名最近被诊断患有 ASD 的儿童的父母那里探讨了 FCC 的关键要素。父母对他们接受 FCC 的程度评价很高，并讨论了提供者表现 FCC 的方式。然而，大多数父母表示，他们的孩子接受诊断的时期压力很大，并报告了抑郁和焦虑症状。该研究指出了医疗保健提供者在儿童接受 ASD 诊断时可以增强向家庭提供 FCC 的方式。
