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通过远程支持加强自闭症护理:以家庭为中心的方法。

Enhancing autism care through remote support: A family-centered approach.

作者信息

Zhang Jun-Jie, Wang En-Na

机构信息

School of Psychology, Northwest Normal University, Lanzhou 730070, Gansu Province, China.

出版信息

World J Psychiatry. 2025 Apr 19;15(4):102645. doi: 10.5498/wjp.v15.i4.102645.

DOI:10.5498/wjp.v15.i4.102645
PMID:40309586
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12038657/
Abstract

Autism spectrum disorder (ASD) poses significant challenges for families, with limited access to specialized care being a critical concern. The coronavirus disease 2019 pandemic has accelerated the adoption of remote support, highlighting its potential to enhance family-centered care for children with ASD. In this editorial, we comment on the article by Lu , emphasizing the effectiveness of integrating remote support courses with traditional caregiver-mediated interventions. We further explore the benefits of remote support in delivering family-centered care, summarize the essential components of effective family-centered remote support, outline key considerations for implementation, and discuss potential future research directions. We conclude that family-centered remote support has the potential to significantly improve outcomes and quality of life for individuals with ASD and their families.

摘要

自闭症谱系障碍(ASD)给家庭带来了巨大挑战,获得专业护理的机会有限是一个关键问题。2019冠状病毒病疫情加速了远程支持的采用,凸显了其增强以家庭为中心的自闭症儿童护理的潜力。在这篇社论中,我们对卢的文章发表评论,强调将远程支持课程与传统的照顾者介导干预措施相结合的有效性。我们进一步探讨远程支持在提供以家庭为中心的护理方面的益处,总结有效的以家庭为中心的远程支持的基本要素,概述实施的关键考虑因素,并讨论潜在的未来研究方向。我们得出结论,以家庭为中心的远程支持有可能显著改善自闭症患者及其家庭的治疗效果和生活质量。

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Enhancing autism care through remote support: A family-centered approach.通过远程支持加强自闭症护理:以家庭为中心的方法。
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2
Enhancing autism care: The role of remote support in parental well-being and child development.加强自闭症护理:远程支持在父母幸福感和儿童发展中的作用。
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本文引用的文献

1
Effects of remote support courses on parental mental health and child development in autism: A randomized controlled trial.远程支持课程对自闭症患儿家长心理健康及儿童发育的影响:一项随机对照试验
World J Psychiatry. 2024 Dec 19;14(12):1892-1904. doi: 10.5498/wjp.v14.i12.1892.
2
Effectiveness, implementation settings, and research priorities of telemedicine-delivered interventions for children and adolescents with autism spectrum disorder: A systematic review.远程医疗干预措施在儿童和青少年自闭症谱系障碍中的有效性、实施环境和研究重点:系统评价。
Neurosci Biobehav Rev. 2024 Nov;166:105875. doi: 10.1016/j.neubiorev.2024.105875. Epub 2024 Sep 8.
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Integration of Family Navigation into ECHO Autism for Pediatric Primary Care in Underserved Communities.将家庭导航融入社区医疗服务不足地区的儿科初级保健ECHO自闭症项目。
J Autism Dev Disord. 2024 Jul 2. doi: 10.1007/s10803-024-06445-9.
4
Remote Physiotherapy for Children with ASD during the COVID-19 Pandemic: A Thematic Analysis of Physical Therapists' Perspectives.新冠疫情期间针对自闭症谱系障碍儿童的远程物理治疗:物理治疗师观点的主题分析
J Clin Med. 2024 Mar 11;13(6):1610. doi: 10.3390/jcm13061610.
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ChatGPT: Artificial Intelligence as a Potential Tool for Parents Seeking Information About Autism.ChatGPT:人工智能作为父母获取自闭症信息的潜在工具。
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Educators' experiences and reflections on the implementation of evidence-based practices for autistic students in public schools during the COVID-19 pandemic.教育工作者在新冠疫情期间对公立学校自闭症学生实施循证实践的经验与反思。
Implement Res Pract. 2023 Jul 24;4:26334895231189197. doi: 10.1177/26334895231189197. eCollection 2023 Jan-Dec.
7
Family-Centered Interventions for Children on the Autism Spectrum (2013-2021).以家庭为中心的自闭症谱系儿童干预措施(2013-2021)。
Am J Occup Ther. 2023 Mar 1;77(Suppl 1). doi: 10.5014/ajot.2023.77S10021.
8
A systematic review of privacy-preserving methods deployed with blockchain and federated learning for the telemedicine.对用于远程医疗的区块链和联邦学习所采用的隐私保护方法的系统综述。
Healthc Anal (N Y). 2023 Nov;3:100192. doi: 10.1016/j.health.2023.100192. Epub 2023 May 5.
9
Racial and Ethnic Disparities in Geographic Access to Autism Resources Across the US.美国各地自闭症资源获取的地理分布存在种族和民族差异。
JAMA Netw Open. 2023 Jan 3;6(1):e2251182. doi: 10.1001/jamanetworkopen.2022.51182.
10
Video-Feedback Approach Improves Parental Compliance to Early Behavioral Interventions in Children with Autism Spectrum Disorders during the COVID-19 Pandemic: A Pilot Investigation.视频反馈方法提高了新冠疫情期间自闭症谱系障碍儿童家长对早期行为干预的依从性:一项初步调查。
Children (Basel). 2022 Nov 8;9(11):1710. doi: 10.3390/children9111710.