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[哮喘患者的疾病管理经验:扎根理论方法]

[The Disease Management Experience of Patients with Asthma: Grounded Theory Approach].

作者信息

Kim Bohye, Kim Oksoo

机构信息

College of Nursing, Ewha Womans University, Seoul, Korea.

出版信息

J Korean Acad Nurs. 2020 Oct;50(5):714-726. doi: 10.4040/jkan.20139.

DOI:10.4040/jkan.20139
PMID:33142302
Abstract

PURPOSE

The aim of this study was to develop a situation-specific theory to explain the disease management experience of patients with asthma.

METHODS

Twenty participants with asthma were selected using the theoretical sampling method. The data were acquired through in-depth interviews conducted from June to October 2018 and analyzed using the grounded theory approach of Strauss and Corbin.

RESULTS

In total, 69 concepts, 30 subcategories, and 13 categories were generated to explain the disease management experience of patients with asthma. The core category of the disease management experience of patients with asthma was 'management of the disease to prevent aggravation of symptoms over the lifetime'. The disease management process of asthma patients included three steps: the 'cognition phase', the 'adjustment phase', and the 'maintenance phase'. However, some patients remained in the 'stagnation phase' of disease management, which represents the result of the continual pursuit of risky health behavior. There were three types of disease management experiences among patients with asthma: 'self-managing', 'partially self-managing', and 'avoidant'.

CONCLUSION

This study shows that patients with asthma must lead their disease management process to prevent exacerbation of their symptoms. It is imperative to develop nursing strategies and establish policies for effective disease management of patients with asthma based on their individual disease management processes and types.

摘要

目的

本研究旨在构建一种情境特定理论,以解释哮喘患者的疾病管理体验。

方法

采用理论抽样方法选取20名哮喘患者。数据于2018年6月至10月通过深度访谈获取,并运用施特劳斯和科尔宾的扎根理论方法进行分析。

结果

共生成69个概念、30个子类别和13个类别,以解释哮喘患者的疾病管理体验。哮喘患者疾病管理体验的核心类别是“终身管理疾病以防止症状加重”。哮喘患者的疾病管理过程包括三个步骤:“认知阶段”、“调整阶段”和“维持阶段”。然而,一些患者仍处于疾病管理的“停滞阶段”,这是持续追求危险健康行为的结果。哮喘患者有三种疾病管理体验类型:“自我管理型”、“部分自我管理型”和“回避型”。

结论

本研究表明,哮喘患者必须主导其疾病管理过程以防止症状加重。基于患者个体的疾病管理过程和类型,制定护理策略并建立有效管理哮喘患者疾病的政策势在必行。

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本文引用的文献

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Association between smoking type and prevalence of atopic dermatitis and asthma in men and women.吸烟类型与男性和女性特应性皮炎及哮喘患病率之间的关联。
Int J Nurs Pract. 2018 Dec;24(6):e12680. doi: 10.1111/ijn.12680. Epub 2018 Nov 5.
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Understanding patients' perceptions of asthma control: a qualitative study.理解哮喘控制患者的认知:一项定性研究。
Eur Respir J. 2018 Jun 28;51(6). doi: 10.1183/13993003.01346-2017. Print 2018 Jun.
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Working while unwell: Workplace impairment in people with severe asthma.带病工作:严重哮喘患者的工作场所损伤。
Clin Exp Allergy. 2018 Jun;48(6):650-662. doi: 10.1111/cea.13153. Epub 2018 May 17.
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"I have lost in every facet of my life": the hidden burden of severe asthma.“我在生活的方方面面都失败了”:严重哮喘的隐性负担。
Eur Respir J. 2017 Sep 20;50(3). doi: 10.1183/13993003.00765-2017. Print 2017 Sep.
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What do adolescents with asthma really think about adherence to inhalers? Insights from a qualitative analysis of a UK online forum.患有哮喘的青少年对吸入器治疗依从性的真实想法是什么?来自对一个英国在线论坛的定性分析的见解。
BMJ Open. 2017 Jun 13;7(6):e015245. doi: 10.1136/bmjopen-2016-015245.
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Life Impact and Treatment Preferences of Individuals with Asthma and Chronic Obstructive Pulmonary Disease: Results from Qualitative Interviews and Focus Groups.哮喘和慢性阻塞性肺疾病患者的生活影响及治疗偏好:定性访谈和焦点小组的结果
Adv Ther. 2017 Jun;34(6):1466-1481. doi: 10.1007/s12325-017-0557-0. Epub 2017 May 23.
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Accommodating interruptions: A grounded theory of young people with asthma.适应中断:哮喘青少年的扎根理论研究。
J Clin Nurs. 2018 Jan;27(1-2):212-222. doi: 10.1111/jocn.13874. Epub 2017 Jun 28.
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A qualitative investigation of the impact of asthma and self-management strategies among older adults.一项关于哮喘及自我管理策略对老年人影响的定性研究。
J Asthma. 2017 Jan 2;54(1):39-45. doi: 10.1080/02770903.2016.1193602. Epub 2016 Jun 17.
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Co-morbid psychological dysfunction is associated with a higher risk of asthma exacerbations: a systematic review and meta-analysis.共病心理功能障碍与哮喘急性加重风险较高相关:一项系统评价和荟萃分析。
J Thorac Dis. 2016 Jun;8(6):1257-68. doi: 10.21037/jtd.2016.04.68.
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Current Asthma Prevalence by Weight Status Among Adults: United States, 2001-2014.2001 - 2014年美国成年人中按体重状况划分的当前哮喘患病率
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