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一项探索约旦人对国家婚前检查计划理解的大规模研究:对约旦人来说,危险婚姻是一个可行的选择吗?

A large-scale study exploring understanding of the national premarital screening program among Jordanians: Is an at-risk marriage a valid option for Jordanians?

机构信息

The Hashemite University, Jordan.

出版信息

Public Underst Sci. 2021 Apr;30(3):319-330. doi: 10.1177/0963662520968468. Epub 2020 Nov 5.

Abstract

Detecting carrier couples through premarital screening implementation is an effective way of controlling thalassaemia. The aim of this study was to investigate the knowledge of university students towards premarital screening and their possible involvement in an at-risk marriage. Students ( = 976) were chosen randomly from Jordanian universities. The questionnaire consisted of three sections: socio-demographical data, the students' knowledge about the screening programme, and finally their beliefs and future decisions related to it. Most (90%) participants were aware of the premarital screening availability. Females had significantly better understanding of premarital screening compared to males. Despite the majority of the participants not wanting to go ahead with at-risk marriages, 23% would not be deterred from marrying their anticipated partner and believed engaging in at-risk marriage was a valid idea. We suggest providing more effective educational programmes, genetic counselling and free prenatal diagnosis for at-risk couples.

摘要

通过婚前筛查实施来发现携带者配偶是控制地中海贫血症的有效方法。本研究旨在调查大学生对婚前筛查的了解程度,以及他们在高危婚姻中可能扮演的角色。我们从约旦各所大学中随机抽取了 976 名学生作为研究对象。问卷由三个部分组成:社会人口统计学数据、学生对筛查计划的了解程度,以及他们对相关问题的信仰和未来决策。大多数(90%)参与者了解婚前筛查的可用性。与男性相比,女性对婚前筛查的理解明显更好。尽管大多数参与者不希望参与高危婚姻,但仍有 23%的人不会因此而阻止他们与预期伴侣结婚,他们认为参与高危婚姻是一个可行的想法。因此,我们建议为高危夫妇提供更有效的教育计划、遗传咨询和免费的产前诊断。

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