Department of Public Health Sciences, Queen's University, Kingston, ON, Canada.
Department of Health Sciences, Lakehead University, Thunder Bay, ON, Canada.
J Appl Res Intellect Disabil. 2021 Mar;34(2):670-674. doi: 10.1111/jar.12825. Epub 2020 Nov 5.
Study of frailty in adults with intellectual and developmental disabilities (IDD) is relatively new. To build the body of literature, an international consensus statement on how to support adults with IDD as they become frail was developed based on fictional cases. This study examined the face validity and applicability of the consensus statement to real-world care planning.
Twenty-three care plans for adults with IDD who were classified along the frailty continuum were reviewed. Documented goals, actions and outcomes were coded according to the consensus statement's principles and recommendations.
The recommendations 'Improvement and maintenance are viable goals' and 'Intersectoral collaboration is needed' were documented the most often. Attention to the needs of formal and informal caregivers was mentioned the least often in care plans.
This study provides some support for the face validity of the consensus statement and its applicability to supporting adults with IDD who are frail.
成年人智力和发育障碍（IDD）的脆弱性研究相对较新。为了构建文献体系，根据虚构案例制定了一项关于如何支持成年 IDD 人群变得脆弱的国际共识声明。本研究通过审查现实世界的护理计划，考察了共识声明的表面有效性和适用性。
对 23 名沿着脆弱性连续谱分类的成年 IDD 患者的护理计划进行了审查。根据共识声明的原则和建议，对记录的目标、行动和结果进行了编码。
“改善和维持是可行的目标”和“需要跨部门合作”这两条建议被记录的次数最多。护理计划中很少提及对正式和非正式照顾者的需求。
本研究在一定程度上支持了共识声明的表面有效性及其对支持脆弱的成年 IDD 患者的适用性。
