Ouellette-Kuntz Hélène, Martin Lynn, Burke Eilish, McCallion Philip, McCarron Mary, McGlinchey Eimear, Sandberg Magnus, Schoufour Josje, Shooshtari Shahin, Temple Bev
Department of Public Health Sciences, Queen's University, Kingston, ON, Canada.
Department of Health Sciences, Lakehead University, Thunder Bay, ON, Canada.
J Appl Res Intellect Disabil. 2019 Jan;32(1):35-42. doi: 10.1111/jar.12499. Epub 2018 Jun 27.
While higher rates and earlier onset of frailty have been reported among adults with intellectual and developmental disabilities (IDD), research on how best to support these individuals is lacking.
An international consultation relied on three consensus building methods: the Nominal Group Technique, an NIH consensus conference approach, and a Delphi survey.
There is agreement that person-centered planning and aging in place should be guiding principles. Frailty must be considered earlier than in the general population with the recognition that improvement and maintenance are viable goals. Intersectoral collaboration is needed to coordinate assessments and actions. Safety and planning for the future are important planning considerations, as are the needs of caregivers. Ongoing research is needed.
The statement offers guidance to respond to frailty among adults with IDD and fosters ongoing exchange internationally on best practice. As new evidence emerges, the statement should be revisited and revised.
虽然有报道称，智力和发育障碍（IDD）成年人的衰弱发生率更高且发病更早，但关于如何最好地支持这些人的研究却很缺乏。
一次国际咨询采用了三种达成共识的方法：名义群体技术、美国国立卫生研究院共识会议方法和德尔菲调查。
人们一致认为，以个人为中心的规划和就地养老应作为指导原则。必须比一般人群更早地考虑衰弱问题，同时认识到改善和维持是可行的目标。需要跨部门合作来协调评估和行动。安全和未来规划是重要的规划考虑因素，照顾者的需求也是如此。需要持续进行研究。
该声明为应对IDD成年人的衰弱提供了指导，并促进了国际上关于最佳实践的持续交流。随着新证据的出现，应重新审视和修订该声明。
