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不确定的治疗目标和结果背景下的共同决策:剖析一个伴有肠外瘘的穿透性腹部创伤病例。

Shared Decision-Making in the Context of Uncertain Care Goals and Outcomes: Dissecting a Penetrating Abdominal Trauma Case Complicated by Enterocutaneous Fistulae.

机构信息

Department of General Surgery, 12279Wake Forest Baptist Health, Winston-Salem, NC, USA.

Department of Internal Medicine, 12279Wake Forest Baptist Health, Winston-Salem, NC, USA.

出版信息

Am Surg. 2020 Nov;86(11):1456-1461. doi: 10.1177/0003134820960051. Epub 2020 Nov 9.

DOI:10.1177/0003134820960051
PMID:33167706
Abstract

Surgeons care deeply about their patients, their patient's surgical outcomes, and their fund of knowledge as it relates to disease, treatment options, and risk is remarkable. Unfortunately, surgical patients' values, hopes, fears, and unacceptable levels of suffering are rarely elicited and addressed while constructing surgical treatment plans, even when the stakes are high. How can surgeons bring all their experience, education, and expertise to bear in a patient-centered manner amidst uncertainty? Surgeons typically emulate mentors who either employed a solely informative, facilitative, or directive/paternalistic approach to decision-making. These 3 styles fail to simultaneously address: (1) what matters most to patients and (2) the surgeon's expertise. Since communication in each of these 3 approaches is unidirectional, and the decisional power locus is imbalanced, they are unshared, nonpartnering, and-perhaps surprisingly-not patient-centered. Patient-centered, collaborative shared decision-making (SDM) approaches align with palliative care principles and are rarely employed, taught, or modeled. Furthermore, nonpartnering approaches to surgical decision-making are often laden with unintended consequences, such as patient and family suffering and the suffering of surgeons. We present the high-risk case of an abdominal gunshot wound in a morbidly obese man, which was complicated by 3 enterocutaneous fistulae and a loss of abdominal wall integrity, where ongoing empathic, partnering SDM dialogue is enabling a patient-centered and value-concordant care plan. The authors invite you to virtually journey with us as this case unfolds, as the impending surgical decisions are substantial and weighty. Uncertainty and risks appear at every turn-providing additional challenges to overcome.

摘要

外科医生非常关心他们的患者、患者的手术结果以及他们与疾病、治疗选择和风险相关的知识库,这是非常了不起的。不幸的是,在制定手术治疗计划时,很少有外科医生会主动了解和关注患者的价值观、希望、恐惧和无法承受的痛苦,即使手术的风险很高。外科医生如何在不确定的情况下以患者为中心,充分利用他们的经验、教育和专业知识?外科医生通常会效仿导师,导师要么采用纯粹的信息提供、促进或指令/家长式的决策方法。这 3 种方法都不能同时解决:(1)患者最关心的问题;(2)外科医生的专业知识。由于这 3 种方法中的每一种沟通都是单向的,决策权力中心是不平衡的,因此它们是不共享的、非合作的,也许令人惊讶的是,不是以患者为中心的。以患者为中心的、协作的共同决策 (SDM) 方法与姑息治疗原则一致,但很少被采用、教授或模拟。此外,非合作的外科决策方法往往会带来意想不到的后果,例如患者和家属的痛苦以及外科医生的痛苦。我们提出了一个腹部枪伤的高危病例,该病例发生在一名病态肥胖的男性身上,并发 3 个肠外瘘和腹壁完整性丧失,持续的同理心、合作的 SDM 对话使患者能够接受以患者为中心和符合价值观的护理计划。作者邀请您与我们一起虚拟地体验这个病例,因为即将做出的手术决策非常重要和重大。不确定性和风险似乎无处不在,这给我们带来了额外的挑战。

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