Cancer Research Institute, University of South Australia, Adelaide, South Australia, Australia.
Department of Rural Health, Allied Health and Human Performance, University of South Australia, North Terrace, South Australia, Adelaide, Australia.
J Cancer Educ. 2022 Aug;37(4):973-982. doi: 10.1007/s13187-020-01908-w. Epub 2020 Nov 11.
Rural cancer patients have inferior cancer outcomes and unique unmet information needs. This paper explores the value of rural people affected by cancer delivering cancer-related education and support to their peers via 3-5 min online YouTube films. In part 1, 14 rural Australians affected by cancer (10 survivors, 4 carers), 50% (7/14) female, 55-79 years, "storytellers", were purposively invited to be filmed sharing their cancer-related experience and advice for others facing similar challenges. They then reflected on their storytelling experience during semi-structured interviews with an independent researcher. In part 2, 11 rural South Australians affected by cancer (8 survivors, 3 carers), 82% (9/11) female, 32-75 years, "viewers", who had watched at least three of the videos, were interviewed. When data saturation was reached, thematic analysis was employed. Storytellers were found to be highly satisfied with the film-making process and product. They valued rapport building prior to filming and the opportunity to help others. They also found storytelling cathartic and the films useful in communicating their cancer experience to family and friends. Rural viewers appreciated the honesty, authenticity, relatability and believability of the storytellers, the practical advice on rural-specific psychosocial issues, acknowledgment of the impact of isolation and the opportunity to understand others' cancer experiences. The film's short duration and professional film-making added appeal. Inclusion of younger storytellers and methods of delivery other than YouTube were suggested. This study highlights the value of this approach for storytellers and viewers. It may be particularly beneficial for isolated rural cancer survivors who feel that their unique challenges are not adequately addressed by mainstream cancer education resources However, further quantitative research to test acceptability and impact in representative rural samples is required.
农村癌症患者的癌症预后较差，且存在独特的未满足的信息需求。本文探讨了农村癌症患者通过 3-5 分钟的在线 YouTube 影片向同龄人提供癌症相关教育和支持的价值。在第 1 部分中，14 名受癌症影响的澳大利亚农村居民（10 名幸存者，4 名照顾者），50%（7/14）为女性，年龄在 55-79 岁之间，作为“故事讲述者”，受邀拍摄分享他们的癌症相关经历和应对类似挑战的建议。然后，他们在与独立研究人员进行的半结构化访谈中反思了他们的故事讲述经验。在第 2 部分中，11 名受癌症影响的南澳大利亚农村居民（8 名幸存者，3 名照顾者），82%（9/11）为女性，年龄在 32-75 岁之间，作为“观众”，观看了至少三部影片，接受了采访。当达到数据饱和时，采用了主题分析。故事讲述者对电影制作过程和产品非常满意。他们重视拍摄前的建立关系的机会，以及帮助他人的机会。他们还发现故事讲述具有宣泄作用，影片有助于向家人和朋友传达他们的癌症经历。农村观众欣赏故事讲述者的诚实、真实性、相关性和可信度，以及对农村特有的社会心理问题的实用建议、对孤立影响的承认以及了解他人癌症经历的机会。影片的短时长和专业的电影制作增加了吸引力。有观众建议包括更年轻的故事讲述者和除了 YouTube 之外的其他交付方式。这项研究强调了这种方法对故事讲述者和观众的价值。它可能对感到自己独特的挑战没有得到主流癌症教育资源充分解决的孤立农村癌症幸存者特别有益。但是，需要在具有代表性的农村样本中进行进一步的定量研究，以测试可接受性和影响。
