Warner Echo L, Kent Erin E, Trevino Kelly M, Parsons Helen M, Zebrack Bradley J, Kirchhoff Anne C
Cancer Control and Population Sciences, Huntsman Cancer Institute, Salt Lake City, Utah.
Outcomes Research Branch, National Cancer Institute, National Institutes of Health, Bethesda, Maryland.
Cancer. 2016 Apr 1;122(7):1029-37. doi: 10.1002/cncr.29866. Epub 2016 Feb 5.
A cancer diagnosis during adolescence or young adulthood may negatively influence social well-being. The existing literature concerning the social well-being of adolescents and young adults (AYAs) with cancer was reviewed to identify gaps in current research and highlight priority areas for future research.
A systematic review of the scientific literature published in English from 2000 through 2014 was performed. Eligible studies included patients and survivors diagnosed between the ages of 15 to 39 years that reported on social well-being domains in the City of Hope Cancer Survivor Quality of Life Model. Each article was reviewed for relevance using a standardized template. A total of 253 potential articles were identified. After exclusions, a final sample of 26 articles identified domains of social well-being that are believed to be understudied among AYAs with cancer: 1) educational attainment, employment, and financial burden; 2) social relationships; and 3) supportive care. Articles were read in their entirety, single coded, and summarized according to domain.
AYAs with cancer report difficulties related to employment, educational attainment, and financial stability. They also report problems with the maintenance and development of peer and family relationships, intimate and marital relationships, and peer support. Supportive services are desired among AYAs. Few studies have reported results in reference to comparison samples or by cancer subtypes.
Future research studies on AYAs with cancer should prioritize the inclusion of underserved AYA populations, more heterogeneous cancer samples, and comparison groups to inform the development of supportive services. Priority areas for potential intervention include education and employment reintegration, and social support networks.
在青少年或青年时期被诊断出患有癌症可能会对社会幸福感产生负面影响。对现有关于患有癌症的青少年和青年（AYA）社会幸福感的文献进行综述，以找出当前研究中的差距，并突出未来研究的重点领域。
对2000年至2014年以英文发表的科学文献进行系统综述。符合条件的研究包括年龄在15至39岁之间被诊断出的患者和幸存者，这些研究报告了希望之城癌症幸存者生活质量模型中的社会幸福感领域。使用标准化模板对每篇文章进行相关性审查。共识别出253篇潜在文章。排除后，最终样本为26篇文章，这些文章确定了在患有癌症的AYA中被认为研究不足的社会幸福感领域：1）教育程度、就业和经济负担；2）社会关系；3）支持性护理。文章全文阅读，进行单编码，并按领域进行总结。
患有癌症的AYA报告了与就业、教育程度和经济稳定相关的困难。他们还报告了在维持和发展同伴及家庭关系、亲密和婚姻关系以及同伴支持方面存在问题。AYA希望获得支持性服务。很少有研究报告了关于比较样本或癌症亚型的结果。
未来关于患有癌症的AYA的研究应优先纳入服务不足的AYA人群、更多样化的癌症样本和比较组，以为支持性服务的发展提供信息。潜在干预的重点领域包括教育和就业重新融入以及社会支持网络。
