Department of Pediatrics, University of North Carolina School of Medicine, Chapel Hill, NC, 27599-7596, USA.
Pediatr Res. 2021 Mar;89(4):722-724. doi: 10.1038/s41390-020-01243-2. Epub 2020 Nov 12.
Based on a survey of families of very preterm infants, Seppanen et al report that: 1) parents rated post-discharge (post-NICU) care as poor or fair for 14.2% of children; 2) parents of one-third of children with health or developmental disorders rated their child’s post-hospital care as poor or fair, as compared to 12–13% of parents of typically developing and healthy children; and 3) parents’ suggestions for ways to improve post-hospital care focused primarily on better communication between the health care team and parents and better coordination of the child’s care. These findings point to a large opportunity for improving post-NICU services for infants born very preterm, especially for children with health or developmental disorders. In addition to gathering more information about families’ perspectives, vigorous quality improvement methods should be applied to improve the effectiveness of post-NICU clinics and the health and development outcomes of the infants and families served by these clinics.
基于对极早产儿家庭的调查，Seppanen 等人报告：1）14.2%的家长对出院后（NICU 后）的护理评价较差或一般；2）三分之一有健康或发育障碍的儿童的家长对其出院后护理评价较差或一般，而通常发育良好和健康的儿童的家长比例为 12-13%；3）家长对改善出院后护理的建议主要集中在改善医护人员与家长之间的沟通以及更好地协调儿童护理。这些发现表明，有很大的机会改善极早产儿的 NICU 后服务，特别是对有健康或发育障碍的儿童。除了收集更多有关家庭观点的信息外，还应采用积极的质量改进方法来提高 NICU 后诊所的效果，以及这些诊所服务的婴儿及其家庭的健康和发展结果。
