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本文引用的文献

1
The Use of Advance Directives in Specialized Care Units: A Focus Group Study With Healthcare Professionals in Madrid.《专科护理单元中预立医疗指示的使用:马德里医护专业人员的焦点小组研究》
J Bioeth Inq. 2020 Sep;17(3):395-405. doi: 10.1007/s11673-020-09991-w. Epub 2020 Jul 28.
2
What do Galicia's nurses know about living wills?加利西亚的护士对生前预嘱了解多少?
Enferm Clin (Engl Ed). 2020 Jan-Feb;30(1):16-22. doi: 10.1016/j.enfcli.2019.09.017. Epub 2019 Nov 14.
3
Advance healthcare directives in mental health: A qualitative analysis from a Spanish healthcare professional's viewpoint.精神健康中的预先医疗指示:来自西班牙医疗保健专业人员视角的定性分析。
J Psychiatr Ment Health Nurs. 2019 Sep;26(7-8):223-232. doi: 10.1111/jpm.12539. Epub 2019 Jul 17.
4
[Knowledge and attitudes of health care professionals in advance healthcare directives].[医疗保健专业人员对预先医疗指示的认知与态度]
J Healthc Qual Res. 2018 Sep-Oct;33(5):270-277. doi: 10.1016/j.jhqr.2018.05.005. Epub 2018 Aug 8.
5
[Design of a questionnaire on the knowledge and attitudes of the population of Madrid (Spain) facing the end-of-life].
Gac Sanit. 2018 Jul-Aug;32(4):373-376. doi: 10.1016/j.gaceta.2017.09.009. Epub 2017 Dec 6.
6
[Knowledge and attitudes of health professionals towards advance directives].[卫生专业人员对预立医疗指示的认知与态度]
Gac Sanit. 2018 Jul-Aug;32(4):339-345. doi: 10.1016/j.gaceta.2017.08.006. Epub 2017 Oct 28.
7
Usefulness of questionnaires on advance directives in haemodialysis units.在血液透析单位中使用预先指示问卷的实用性。
Nephrol Dial Transplant. 2017 Oct 1;32(10):1676-1682. doi: 10.1093/ndt/gfx245.
8
Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care.预先医疗照护计划的定义和建议:欧洲缓和医疗协会支持的国际共识。
Lancet Oncol. 2017 Sep;18(9):e543-e551. doi: 10.1016/S1470-2045(17)30582-X.
9
[Validation of the knowledge and attitudes of health professionals in the Living Will Declaration process].[生前预嘱声明过程中卫生专业人员知识与态度的验证]
Aten Primaria. 2017 Apr;49(4):233-239. doi: 10.1016/j.aprim.2016.06.004. Epub 2016 Nov 30.
10
[Facilitators and barriers regarding end of life care at nursing homes: A focus group study].[养老院临终关怀的促进因素与障碍:一项焦点小组研究]
Aten Primaria. 2017 May;49(5):278-285. doi: 10.1016/j.aprim.2016.09.004. Epub 2016 Nov 25.

西班牙的预先指示为何失败?

Why have Advance Directives failed in Spain?

作者信息

Herreros Benjamín, Benito María, Gella Pablo, Valenti Emanuele, Sánchez Beatriz, Velasco Tayra

机构信息

Instituto de Ética Clínica Francisco Vallés, Universidad Europea de Madrid, Madrid, Spain.

Unidad de Medicina Interna, Hospital Universitario Fundación Alcorcón, Calle Budapest 1, 28922, Alcorcón, Madrid, Spain.

出版信息

BMC Med Ethics. 2020 Nov 16;21(1):113. doi: 10.1186/s12910-020-00557-4.

DOI:10.1186/s12910-020-00557-4
PMID:33198746
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7667789/
Abstract

BACKGROUND

In Spain, there has been great effort by lawmakers to put Advance Directives (ADs) into practice since 2002. At the same time, the field of bioethics has been on the rise, a discipline that has spurred debate on the right of patients to exercise their autonomy. Despite all this, the implementation of ADs can be said to have failed in Spain, because its prevalence is very low, there is a great lack of knowledge about them and they have very little impact on clinical decisions. The purpose of this article is to analyze and discuss the main reasons for the failure of ADs in Spain.

MAIN BODY

The main reasons why ADs have no impact on clinical practice in Spain have been fundamentally four: (1) the training of health professionals about the end of life and AD is lacking; (2) there has been no public process to increase awareness about AD, and therefore people (with the exception of specific highly sensitized groups) know little about them; (3) the bureaucratic procedure to document and implement ADs is excessively complex and cumbersome, creating a significant barrier to their application; (4) in Spain, the remnants of a paternalistic medical culture continue to exist, which causes shared decision-making to be difficult.

CONCLUSION

Due to the four reasons mentioned above, AD have not been a useful tool to help honor patients' autonomous decisions about their future care and, therefore, they have not achieved their objective. However, despite the difficulties and problems identified, it has also been observed that health care professionals and the Spanish public have a very positive view of AD. Having identified the problems which have kept AD from being successful, strategies must be developed to help improve their implementation into the future.

摘要

背景

自2002年以来,西班牙的立法者为实施预先指示(ADs)付出了巨大努力。与此同时,生物伦理领域不断发展,这一学科引发了关于患者行使自主权权利的辩论。尽管如此,预先指示在西班牙的实施可以说是失败的,因为其普及率很低,人们对其了解严重不足,并且它们对临床决策的影响微乎其微。本文旨在分析和讨论预先指示在西班牙失败的主要原因。

主体

预先指示在西班牙对临床实践没有影响的主要原因基本上有四个:(1)卫生专业人员缺乏关于生命末期和预先指示的培训;(2)没有开展提高对预先指示认识的公众宣传活动,因此人们(除了特定的高敏感群体)对其知之甚少;(3)记录和实施预先指示的官僚程序过于复杂和繁琐,对其应用造成了重大障碍;(4)在西班牙,家长式医疗文化的残余仍然存在,这使得共同决策变得困难。

结论

由于上述四个原因,预先指示未能成为帮助尊重患者对未来护理自主决策的有用工具,因此没有实现其目标。然而,尽管发现了困难和问题,但也观察到卫生保健专业人员和西班牙公众对预先指示持非常积极的看法。在确定了阻碍预先指示成功的问题之后,必须制定策略以帮助在未来改进其实施。