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葡萄牙民众对预先指示的态度:一项在线调查。

Attitudes of the Portuguese population towards advance directives: an online survey.

机构信息

Nursing School, University of Minho, Campus de Gualtar, Braga, 4710-057, Portugal.

Centre for Health Technology and Services Research (CINTESIS@RISE), Department of Community Medicine, Information and Health Decision Sciences (MEDCIDS), Faculty of Medicine, University of Porto, Porto, 4200-450, Portugal.

出版信息

BMC Med Ethics. 2024 Apr 3;25(1):40. doi: 10.1186/s12910-024-01043-x.

Abstract

BACKGROUND

Advance directives (ADs) were implemented in Portugal in 2012. Although more than a decade has passed since Law 25/2012 came into force, Portuguese people have very low levels of adherence. In this context, this study aimed to identify and analyse the attitudes of people aged 18 or older living in Portugal towards ADs and to determine the relationships between sociodemographic variables (gender/marital status/religion/level of education/residence/whether they were a health professional/whether they had already drawn up a living will) and people's attitudes towards ADs.

METHODS

An online cross-sectional analytical study was conducted using a convenience sample. For this purpose, a request (email) that publicized the link to a -form-which included sociodemographic data and the General Public Attitudes Toward Advance Care Directives (GPATACD) scale-was sent to 28 higher education institutions and 30 senior universities, covering all of mainland Portugal and the islands (Azores and Madeira). The data were collected between January and February 2023.

RESULTS

A total of 950 adults from completed the online form. The lower scores (mean 1 and 2) obtained in most responses by applying the GPATACD scale show that the sample of the Portuguese population has a very positive attitude towards ADs. The data showed that women, agnostics/atheists, health professionals and those who had already made a living will had more positive attitudes (p < 0.001) towards ADs. There were no statistically significant differences in the attitudes of the Portuguese population sample towards ADs in relation to marital status, education level, and residence.

CONCLUSION

The results obtained enable us to confirm that this sample of the Portuguese population has a positive attitude towards ADs. We verify that there are certain fringes of this sample with certain sociodemographic characteristics (women, agnostics/atheists, health professionals and those who had already made a living will) that have a more positive attitude towards ADs. This data could facilitate the implementation and adjustment of relevant measures, particularly in the field of health education and aimed at groups with less favourable attitudes, to increase the effectiveness of voluntary exercise of citizens' autonomy in end-of-life care planning.

摘要

背景

葡萄牙于 2012 年实施了预先指示(AD)。尽管自 2012 年第 25 号法律生效以来已经过去了十多年,但葡萄牙人对 AD 的遵守程度非常低。在这种情况下,本研究旨在确定和分析 18 岁或以上居住在葡萄牙的人对 AD 的态度,并确定社会人口统计学变量(性别/婚姻状况/宗教/教育程度/居住地/是否是卫生专业人员/是否已经制定了生前预嘱)与人们对 AD 的态度之间的关系。

方法

使用便利样本进行了一项在线横断面分析研究。为此,向 28 所高等教育机构和 30 所老年大学发送了一封电子邮件,其中包含链接,以完成一份包含社会人口统计学数据和一般公众对提前护理指令态度量表(GPATACD)的表格。数据收集于 2023 年 1 月至 2 月之间。

结果

共有 950 名成年人完成了在线表格。根据 GPATACD 量表,大多数回复的得分较低(平均值为 1 和 2),这表明葡萄牙人口样本对 AD 的态度非常积极。数据显示,女性、不可知论者/无神论者、卫生专业人员和已经制定生前预嘱的人对 AD 的态度更为积极(p<0.001)。在婚姻状况、教育水平和居住地方面,葡萄牙人口样本对 AD 的态度没有统计学上的显著差异。

结论

获得的结果使我们能够确认该葡萄牙人口样本对 AD 持积极态度。我们验证了该样本中的某些社会人口统计学特征(女性、不可知论者/无神论者、卫生专业人员和已经制定生前预嘱的人)的某些边缘群体对 AD 的态度更为积极。这些数据可以促进相关措施的实施和调整,特别是在健康教育领域,并针对态度不太有利的群体,以提高公民在临终关怀规划中自愿行使自主权的有效性。

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