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残疾儿童使用和感知助行器:英国调查。

The use and perception of support walkers for children with disabilities: a United Kingdom survey.

机构信息

College of Health, Medicine and Health Sciences, Brunel University London, London, UK.

Paediatric Physiotherapy Department, Royal Free London NHS Foundation Trust, London, UK.

出版信息

BMC Pediatr. 2020 Nov 18;20(1):528. doi: 10.1186/s12887-020-02401-5.

Abstract

BACKGROUND

Support walkers are a type of assistive device that may enable non-ambulant children with disabilities to walk independently and promote improvements in bowel function, bone mineral density (BMD), mobility, independence, participation and social function. However, there is little evidence to support these benefits and there is a lack of research describing the use of support walkers in clinical practice. This study aimed to examine the use of support walkers for children with disabilities in clinical practice.

METHOD

A survey was distributed via professional organisations, charities and schools associated with paediatric disabilities in the UK. Participants were recruited between January and March 2018. Populations of interest were those who prescribe support walkers to children with disabilities and those who work with children who use them.

RESULTS

In total, 125 people were included in the analysis; 107 responders prescribed support walkers and 18 responders worked with children who used support walkers. The population of children who use support walkers ranged from 6 months to 18 years and included children with cerebral palsy, chromosomal abnormalities and other medical conditions. Use of these devices was also reported in schools, at home and in the community for varying lengths of time. Numerous perceived benefits were noted, most frequent of which were increases in physical activity and enjoyment. By comparison, fewer perceived problems were identified but centred on lack of space and difficulty with transfers.

CONCLUSIONS

This study provides insight into the use of support walkers in the UK, particularly surrounding current practices, which may help to improve consistency in clinical settings. Perceived benefits and problems may provide a basis for identification of appropriate outcome measures to monitor effectiveness. These results should also provide a basis for designing future studies to examine effectiveness of support walkers for paediatric disabilities.

摘要

背景

助行器是一种辅助设备,可使残疾的非步行儿童独立行走,并促进肠道功能、骨密度(BMD)、活动能力、独立性、参与度和社会功能的改善。然而,几乎没有证据支持这些益处,也缺乏描述助行器在临床实践中使用的研究。本研究旨在考察助行器在临床实践中对残疾儿童的使用情况。

方法

通过英国与儿科残疾相关的专业组织、慈善机构和学校分发了一份调查问卷。参与者于 2018 年 1 月至 3 月期间招募。研究对象为为残疾儿童开具助行器处方的人群以及与使用助行器的儿童一起工作的人群。

结果

共有 125 人纳入分析;107 名应答者为残疾儿童开具助行器处方,18 名应答者与使用助行器的儿童一起工作。使用助行器的儿童年龄从 6 个月至 18 岁不等,包括脑瘫、染色体异常和其他疾病的儿童。这些设备也在学校、家庭和社区中使用,使用时间长短不一。报告了许多感知到的益处,最常见的是增加了身体活动和乐趣。相比之下,识别到的问题较少,但集中在缺乏空间和转移困难上。

结论

本研究提供了英国助行器使用情况的深入了解,特别是当前实践情况,这可能有助于提高临床环境的一致性。感知到的益处和问题可能为确定适当的结果测量指标以监测有效性提供基础。这些结果还应为设计未来研究提供依据,以检验助行器对儿科残疾的有效性。

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