Kumar Mayank, Purohit Abhishek, Pramanik Suman, Saini Shashikant
Assistant Professor, Department of Pathology, Autonomous State Medical College, Ayodhya, Jodhpur, India.
Associate Professor, Department of Pathology, All India Institute of Medical Sciences, Jodhpur, India.
J Family Med Prim Care. 2020 Sep 30;9(9):4801-4804. doi: 10.4103/jfmpc.jfmpc_804_20. eCollection 2020 Sep.
To determine the factors influencing awareness about beta-thalassemia in the population.
A cross sectional study was conducted by the Department of Pathology, AIIMS, Jodhpur.
The study population included participants with medical as well as non-medical background, to ensure representation of all sections of the society. Data was collected in an objective survey form drafted in simple language.
The data was analysed using Microsoft Excel and Chi Square Test for Independence was performed.
The participants with a positive family history had significantly more knowledge compared to others, but even these participants didn't have complete knowledge about the disease. Age and gender had no significant impact on the results. The mode of occurrence of beta-thalassemia was known to less than half of the participants, with even less number being aware of the fact that diagnosis of beta-thalassemia can be made before birth. Participants with a medical background were aware that there were several forms of beta-thalassemia, but the knowledge about treatment options was limited.
Various factors affect the awareness in the general population, which has an effect on the outcome of screening programmes. There is a need for successful implementation of a screening programme for beta-thalassemia in order to reduce the financial burden that it imposes on healthcare facilities and to lessen the emotional burden on relatives of patients with the disease.
确定影响人群中β地中海贫血知晓率的因素。
焦特布尔全印医学科学研究所病理科开展了一项横断面研究。
研究人群包括具有医学背景和非医学背景的参与者，以确保社会各阶层都有代表。数据通过用简单语言起草的客观调查问卷收集。
使用Microsoft Excel对数据进行分析，并进行卡方独立性检验。
有阳性家族史的参与者相比其他人拥有显著更多的知识，但即便这些参与者对该疾病也没有全面的了解。年龄和性别对结果没有显著影响。知晓β地中海贫血发病方式的参与者不到一半，甚至知晓β地中海贫血可在出生前诊断的人数更少。有医学背景的参与者知道有多种形式的β地中海贫血，但对治疗方案的了解有限。
多种因素影响普通人群的知晓率，这对筛查项目的结果产生影响。为了减轻β地中海贫血给医疗设施带来的经济负担以及减轻该病患者亲属的情感负担，有必要成功实施β地中海贫血筛查项目。
