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重度β地中海贫血患者的受过教育和未受过教育的父母对产前筛查的认知情况

Awareness Among Educated and Uneducated Parents of Beta-Thalassemia Major Patients About Antenatal Screening.

作者信息

Muhammad Lal, Wajid Khawaja Kamran, Afridi Inayatullah, Ullah Sami, Khan Afzal, Muhammad Amir

机构信息

Pediatrics, Lady Reading Hospital Medical Teaching Institution, Peshawar, PAK.

Pediatric Medicine, Lady Reading Hospital Medical Teaching Institution, Peshawar, PAK.

出版信息

Cureus. 2022 Aug 29;14(8):e28561. doi: 10.7759/cureus.28561. eCollection 2022 Aug.

Abstract

OBJECTIVE

This study aims to determine the awareness among educated and uneducated parents of beta-thalassemia major patients about antenatal screening.

SETTING

The study was conducted by the Lady Reading Hospital Medical Teaching Institution (MTI), Peshawar. Duration of the study: This study was conducted for six months.

MATERIALS AND METHODS

A total of 296 parents of beta-thalassemia major were interviewed. Parents who were not ready to give consent and other hemolytic anemia patients were excluded. Data were collected on self-structure pretested Performa. The demography of the patients and awareness of the parents regarding antenatal screening were recorded from each participant. A chi-squared test was used to assess the association between parental education and antenatal screening. A p-value of less than 0.05 was considered significant.

RESULTS

A total of 296 patients were studied; 160 were males (54.1%), and 136 were females (45.9%). The mean age was 6.84 years. Mothers (74.3%) accompanied majority of the patients. Most of the parents (265; 89.5%) were uneducated, and 80% of the parents were not aware of any antenatal screening.

CONCLUSION

There was a significant association between the education of parents and awareness of antenatal screening (p = 0.01).

摘要

目的

本研究旨在确定重度β地中海贫血患者的受过教育和未受过教育的父母对产前筛查的认知情况。

背景

该研究由白沙瓦的女读医院医学教学机构(MTI)开展。研究持续时间:本研究为期六个月。

材料与方法

共采访了296名重度β地中海贫血患者的父母。未准备好给予同意的父母以及其他溶血性贫血患者被排除在外。数据通过自行构建并预先测试的表格收集。记录每位参与者的患者人口统计学信息以及父母对产前筛查的认知情况。采用卡方检验评估父母教育程度与产前筛查之间的关联。p值小于0.05被认为具有统计学意义。

结果

共研究了296名患者;其中160名是男性(54.1%),136名是女性(45.9%)。平均年龄为6.84岁。大多数患者(74.3%)由母亲陪同。大多数父母(265名;89.5%)未受过教育,80%的父母不知道任何产前筛查。

结论

父母的教育程度与产前筛查的认知情况之间存在显著关联(p = 0.01)。

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本文引用的文献

1
Thalassemias and hemoglobinopathies in Turkey.
Hemoglobin. 2014;38(5):305-7. doi: 10.3109/03630269.2014.938163. Epub 2014 Jul 17.
4
Beta-thalassemia.
Orphanet J Rare Dis. 2010 May 21;5:11. doi: 10.1186/1750-1172-5-11.
5
6
Attitudes to prenatal testing and termination of pregnancy in Saudi Arabia.
Community Genet. 2007;10(3):169-73. doi: 10.1159/000101758.
7
Thalassemia in Iran: epidemiology, prevention, and management.
J Pediatr Hematol Oncol. 2007 Apr;29(4):233-8. doi: 10.1097/MPH.0b013e3180437e02.
9
Fetal outcome and childhood mortality in offspring of mothers with sickle cell trait and disease.
Indian J Pediatr. 1997 Jan-Feb;64(1):79-84. doi: 10.1007/BF02795781.

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