Faculty of Business, Economic and Social Development, Universiti Malaysia Terengganu, Kuala Terengganu, Terengganu, 21030, Malaysia.
F1000Res. 2019 Nov 26;8:1994. doi: 10.12688/f1000research.21079.3. eCollection 2019.
In Malaysia, there are still lack of studies related to the challenges of people infected with HIV (PIWH). Therefore, this study was conducted to explore the experiences of PIWH and how they cope with HIV. This qualitative study was based on a social constructivist and grounded theory approach. A total of 12 PIWH were selected by purposive sampling, all of whom participated in semi-structured and audio-recorded interviews, which were supported with non-participant observations and diary entries on three occasions for each participant. The interviews and diaries were transcribed and analysed using the grounded theory approach, which was assisted by utilizing NVIVO-8 to identify the themes related to the experiences of the participants. PIWH experienced challenges related to their career and relationships with family and others. These challenges led to difficulties in gaining employment and career development, as well as feelings of denial, being uncomfortable, rejection, and labelling. They found that their lives were totally and dramatically changed after being tested positive for HIV. Among PIWH, HIV impacted relationships with significant others and career development. The absence of support and acceptance from significant others affected the ability of PIWH to cope with their daily challenges. The results of this study have implications for policymakers in terms of gaining sufficient knowledge and awareness to provide prevention programmes for HIV/AIDS.
在马来西亚，仍缺乏有关感染艾滋病毒者（PIWH）所面临挑战的研究。因此，本研究旨在探讨 PIWH 的经历以及他们如何应对 HIV。本定性研究基于社会建构主义和扎根理论方法。通过目的性抽样选择了 12 名 PIWH，他们都参加了半结构化和录音采访，同时在每三次采访中还进行了非参与式观察和日记记录。采访和日记使用扎根理论方法进行转录和分析，使用 NVIVO-8 来辅助识别与参与者经历相关的主题。PIWH 经历了与职业和与家人及他人关系相关的挑战。这些挑战导致了就业和职业发展方面的困难，以及否认、不适、拒绝和贴标签的感觉。他们发现，在 HIV 检测呈阳性后，他们的生活完全发生了戏剧性的变化。在 PIWH 中，艾滋病毒对与重要他人的关系和职业发展产生了影响。重要他人的支持和接受的缺失影响了 PIWH 应对日常挑战的能力。本研究的结果对政策制定者在获得充分的知识和认识以提供艾滋病毒/艾滋病预防方案方面具有启示意义。
