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瑞士脊髓损伤患者在 5 年内经历的环境障碍变化:一项前瞻性队列研究。

Change in environmental barriers experienced over a 5-year period by people living with spinal cord injury in Switzerland: a prospective cohort study.

机构信息

Institute for Disaster Management and Reconstruction of Sichuan University and Hong Kong Polytechnic University, Chengdu, China.

Swiss Paraplegic Research, Nottwil, Switzerland.

出版信息

Spinal Cord. 2021 Apr;59(4):441-451. doi: 10.1038/s41393-020-00580-7. Epub 2020 Nov 23.

DOI:10.1038/s41393-020-00580-7
PMID:33230271
Abstract

STUDY DESIGN

Cohort study with two measurement occasions.

OBJECTIVES

To investigate change in environmental barriers experienced by people living with spinal cord injury (SCI) over a 5-year period.

SETTING

Community, Switzerland.

METHODS

Data were from the Swiss spinal cord injury (SwiSCI) survey. Main outcome measure was the Nottwil Environmental Factors Inventory-Short Form. Random-effects Poisson regression featuring between-within estimation was used to examine predictors of the number of environmental barriers and of its change over time.

RESULTS

One thousand five hundred and forty-nine persons participated in Survey 2012 and 1530 participated in Survey 2017; 761 participated in both surveys. In both surveys most participants reported at least three barriers. Leading issues were unfavorable climate, inaccessibility of buildings and public spaces, and lack of or insufficiently adapted means of transportation. Reporting of barriers related to climate, finances, and state services declined over time. Between subjects, having more health problems, lesser physical independence, poorer mental health, and a lower household income were related to a higher number of barriers experienced. Within subjects, improvements in income, physical independence, and mental health over time were related to a reduction in barriers.

CONCLUSIONS

Inaccessibility of buildings and places and problems with transportation remained major barriers over a 5-year period and should be priorities of Swiss disability policy. People with reduced mental and physical health, and those with lower income are vulnerable groups deserving specific attention. Policies targeting income and life-long rehabilitation targeting health promotion and maintenance may be suitable means to reduce the experience of environmental barriers.

摘要

研究设计

具有两个测量时间点的队列研究。

目的

调查在 5 年内,脊髓损伤(SCI)患者所经历的环境障碍的变化。

设置

社区,瑞士。

方法

数据来自瑞士脊髓损伤(SwiSCI)调查。主要结局指标是诺特维尔环境因素清单-简表。采用个体间和个体内估计的随机效应泊松回归,来检验环境障碍数量及其随时间变化的预测因素。

结果

1549 人参加了 2012 年调查,1530 人参加了 2017 年调查,761 人参加了两次调查。在两次调查中,大多数参与者报告至少有三个障碍。主要问题是不利的气候、建筑物和公共场所的可达性差、缺乏或适应性不足的交通工具。与气候、财务和国家服务相关的障碍报告随时间推移而减少。在个体间,健康问题更多、身体独立性更差、心理健康更差、家庭收入更低与经历的障碍数量更多有关。在个体内,随着时间的推移,收入、身体独立性和心理健康的改善与障碍的减少有关。

结论

建筑物和场所的可达性问题以及交通问题在 5 年内仍是主要障碍,应成为瑞士残疾政策的重点。身心健康状况较差和收入较低的人是弱势群体,值得特别关注。针对收入的政策和针对终身康复的以促进和维持健康为目标的政策,可能是减少环境障碍体验的合适手段。

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