Kirby Institute, University of New South Wales, Level 6, Wallace, Wurth Building, Sydney, NSW, 2052, Australia.
Faculty of Health Sciences, Simon Fraser University, Burnaby, BC, Canada.
Arch Sex Behav. 2021 Jan;50(1):83-103. doi: 10.1007/s10508-020-01822-8. Epub 2020 Nov 24.
Despite the fact that HIV can be controlled with medication to undetectable levels where it cannot be passed on, stigmatization of women living with HIV persists. Such stigmatization pivots on stereotypes around sex and sexism and has force in women's lives. Our aim was to create an inspirational resource for women living with HIV regarding sex, relationships, and sexuality: www.lifeandlovewithhiv.ca (launched in July 2018). This paper describes the development and mixed-method evaluation of our first year and a half activities. We situated our work within a participatory arts-based knowledge translation planning framework and used multiple data sources (Google Analytics, stories and comments on the website, team reflections over multiple meetings) to report on interim outcomes and impacts. In our first 1.5 years, we recruited and mentored 12 women living with HIV from around the world (Canada, Australia, New Zealand, Kenya, South Africa, Spain, Nigeria, and the U.S.) to write their own stories, with the support of a mentor/editor, as a way of regaining control of HIV narratives and asserting their right to have pleasurable, fulfilling, and safer sexual lives. Writers published 43 stories about pleasure, orgasm, bodies, identities, trauma, resilience, dating, disclosure, self-love, and motherhood. Our social media community grew to 1600, and our website received approximately 300 visits per month, most by women (70%) and people aged 25-44 years (65%), from more than 50 cities globally, with shifts in use and demographics over time. Qualitative data indicated the power of feminist digital storytelling for opportunity, access, validation, and healing, though not without risks. We offer recommendations to others interested in using arts-based digital methods to advance social equity in sexual health.
尽管通过药物治疗可以将 HIV 控制在无法传播的水平，但感染 HIV 的女性仍面临污名化。这种污名化源于对性和性别歧视的刻板印象，对女性的生活产生了影响。我们的目标是为感染 HIV 的女性制作一个关于性、关系和性健康的鼓舞人心的资源：www.lifeandlovewithhiv.ca（2018 年 7 月推出）。本文描述了我们头一年半活动的开发和混合方法评估。我们将这项工作置于基于参与式艺术的知识转化规划框架内，并使用多种数据源（谷歌分析、网站上的故事和评论、多次会议上的团队反思）来报告中期结果和影响。在最初的 1.5 年里，我们招募并指导了来自世界各地的 12 名感染 HIV 的女性（加拿大、澳大利亚、新西兰、肯尼亚、南非、西班牙、尼日利亚和美国），在导师/编辑的支持下撰写自己的故事，以此重新控制 HIV 叙事并维护自己拥有愉悦、充实和更安全的性生活的权利。作家们发表了 43 篇关于快乐、高潮、身体、身份、创伤、韧性、约会、披露、自爱和母性的故事。我们的社交媒体社区增长到 1600 人，我们的网站每月大约有 300 次访问，大多数访问者是女性（70%）和 25-44 岁的人（65%），来自全球 50 多个城市，随着时间的推移，使用情况和人口统计数据发生了变化。定性数据表明，女权主义数字故事讲述具有机会、获得、验证和疗愈的力量，但并非没有风险。我们为其他有兴趣使用基于艺术的数字方法促进性健康方面社会公平的人提供了建议。
