School of Nursing, University of Michigan, Ann Arbor, Michigan.
Mercy Women's Health, Toledo, Ohio.
J Midwifery Womens Health. 2020 Nov;65(6):813-817. doi: 10.1111/jmwh.13161. Epub 2020 Nov 28.
Life-limiting fetal diagnoses such as anencephaly require families to make decisions in which no options offered will lead to the desired outcome of a healthy newborn. Although informed choice and shared decision-making are important aspects of ethics regarding care choices, they have limitations. In this article, 2 cases of anencephaly diagnosis are presented, and a relational decision-making model of care is proposed as an alternative for aiding pregnant people and their families in making challenging choices in the context of perinatal care.
对于诸如无脑畸形等生命受限的胎儿诊断，需要家庭做出决策，而提供的任何选择都不会导致健康新生儿的理想结果。尽管知情选择和共同决策是医疗保健选择伦理的重要方面，但它们存在局限性。本文介绍了 2 例无脑畸形诊断病例，并提出了一种关系决策模型，作为在围产期护理背景下帮助孕妇及其家庭做出具有挑战性的选择的替代方法。
