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Palliative Care in a Death-Denying Culture: Exploring Barriers to Timely Palliative Efforts for Heart Failure Patients in the Primary Care Setting.在拒绝死亡的文化背景下的姑息治疗:探索基层医疗环境中心力衰竭患者及时开展姑息治疗工作的障碍。
Am J Hosp Palliat Care. 2021 Jan;38(1):77-83. doi: 10.1177/1049909120920545. Epub 2020 Apr 22.
2
Prevalence and Predictors of Burnout Among Hospice and Palliative Care Clinicians in the U.S.美国临终关怀和姑息治疗临床医生的 burnout 患病率及其预测因素
J Pain Symptom Manage. 2020 May;59(5):e6-e13. doi: 10.1016/j.jpainsymman.2019.11.017. Epub 2019 Nov 26.
3
Addressing Palliative Care Clinician Burnout in Organizations: A Workforce Necessity, an Ethical Imperative.应对医疗机构中姑息治疗临床医生的职业倦怠:一项劳动力需求,一项道德义务。
J Pain Symptom Manage. 2017 Jun;53(6):1091-1096. doi: 10.1016/j.jpainsymman.2017.01.007. Epub 2017 Feb 11.
4
"It Is Like Heart Failure. It Is Chronic … and It Will Kill You": A Qualitative Analysis of Burnout Among Hospice and Palliative Care Clinicians.“这就像心力衰竭。它是慢性的……而且会要了你的命”:临终关怀与姑息治疗临床医生职业倦怠的定性分析
J Pain Symptom Manage. 2017 May;53(5):901-910.e1. doi: 10.1016/j.jpainsymman.2016.12.337. Epub 2017 Jan 4.
5
[The compassionate care approach within an institutional framework].[机构框架内的人文关怀方法]
Soins. 2016 May(805):36-8. doi: 10.1016/j.soin.2016.03.008.
6
Improving the wellbeing of staff who work in palliative care settings: A systematic review of psychosocial interventions.改善姑息治疗环境中工作人员的福祉:心理社会干预措施的系统评价
Palliat Med. 2016 Oct;30(9):825-33. doi: 10.1177/0269216316637237. Epub 2016 Mar 4.
7
Building Resilience for Palliative Care Clinicians: An Approach to Burnout Prevention Based on Individual Skills and Workplace Factors.为姑息治疗临床医生培养适应力:一种基于个人技能和工作场所因素的职业倦怠预防方法。
J Pain Symptom Manage. 2016 Aug;52(2):284-91. doi: 10.1016/j.jpainsymman.2016.02.002. Epub 2016 Feb 26.
8
Gadamerian philosophical hermeneutics as a useful methodological framework for the Delphi technique.伽达默尔哲学解释学作为德尔菲技术的有用方法论框架。
Int J Qual Stud Health Well-being. 2015 May 5;10:26291. doi: 10.3402/qhw.v10.26291. eCollection 2015.
9
Orientations can avert psychosocial risks to palliative staff.培训可以避免姑息治疗工作人员面临的心理社会风险。
Psychooncology. 2014 Jun;23(6):716-8. doi: 10.1002/pon.3496. Epub 2014 Feb 12.
10
Understanding Compassion Satisfaction, Compassion Fatigue and Burnout: a survey of the hospice palliative care workforce.理解共情满足、共情疲劳和职业倦怠:对临终关怀和姑息治疗工作者的调查。
Palliat Med. 2013 Feb;27(2):172-8. doi: 10.1177/0269216311431311. Epub 2011 Dec 16.

从无力到被认可——缓和医疗临床医生痛苦体验的意义

From powerlessness to recognition the meaning of palliative care clinicians' experience of suffering.

机构信息

Psychology Department, Université du Québec à Montréal , Montréal, Québec, Canada.

Researcher, Center for Research and Intervention on Suicide, Ethical Issues and End-of-Life Practices , Montreal, Québec, Canada.

出版信息

Int J Qual Stud Health Well-being. 2020 Dec;15(1):1852362. doi: 10.1080/17482631.2020.1852362.

DOI:10.1080/17482631.2020.1852362
PMID:33250017
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7717227/
Abstract

Palliative care (PC) clinicians work alongside people who are at the end of their lives. These patients face death and suffering, which may also cause significant suffering for the PC clinicians themselves. Previous studies suggest that a significant number of PC professionals suffer from compassion fatigue, vicarious trauma and burnout. However, very few studies have attempted to better understand the meaning of PC clinicians' lived experience of suffering in its complexity and intricacy. Drawing upon Interpretative Phenomenological Analysis (IPA), this study aimed to explore the PC clinicians' experience of suffering from a phenomenological and existential perspective. In-depth interviews were conducted with twenty-one specialized PC clinicians who were all part of the same multidisciplinary team. Interviews were analysed using IPA. The three emerging essential themes describing the meaning of clinicians' suffering were 1) Suffering as powerlessness; 2) suffering as non-recognition and 3) easing suffering: the promise of recognition. Result interpretation was based on Paul Ricoeur's existential phenomenology of suffering and recognition. The conclusion calls for support initiatives and interventions aimed at promoting recognition among PC clinicians on personal, professional, and institutional levels.

摘要

姑息治疗(PC)临床医生与生命末期的患者并肩工作。这些患者面临死亡和痛苦,这也可能给 PC 临床医生自身带来巨大的痛苦。先前的研究表明,相当数量的 PC 专业人员患有同情疲劳、替代性创伤和倦怠。然而,很少有研究试图从现象学和存在主义的角度更好地理解 PC 临床医生在其复杂性和复杂性中所经历的痛苦的含义。本研究采用解释现象学分析(IPA),旨在从现象学和存在主义的角度探讨 PC 临床医生的痛苦体验。对 21 名专门从事姑息治疗的临床医生进行了深入访谈,他们都属于同一个多学科团队。使用 IPA 对访谈进行了分析。描述临床医生痛苦含义的三个主要主题是:1)痛苦即无能为力;2)痛苦即不被认可;3)减轻痛苦:认可的承诺。结果解释基于保罗·利科的痛苦和认可的存在现象学。结论呼吁采取支持举措和干预措施,旨在在个人、专业和机构层面促进对 PC 临床医生的认可。