Institute of Physiology and Pathology of Hearing, Ul. M. Mochnackiego 10, 02-042, Warsaw, Poland; World Hearing Center, Ul. Mokra 17, Kajetany, 05-830, Nadarzyn, Poland.
Institute of Physiology and Pathology of Hearing, Ul. M. Mochnackiego 10, 02-042, Warsaw, Poland; World Hearing Center, Ul. Mokra 17, Kajetany, 05-830, Nadarzyn, Poland.
Int J Pediatr Otorhinolaryngol. 2021 Feb;141:110517. doi: 10.1016/j.ijporl.2020.110517. Epub 2020 Nov 25.
There is little research into the relationship between a deaf child's developmental outcomes and their mother's self-perceived parental role. The aim of this study was to find out whether the different levels of global psychomotor development in young deaf children who had a cochlear implant (CI), or were candidates for a CI, were related to particular family factors: the self-perceived parental role and the family quality of life (FQoL) as gauged by their hearing mothers, as well as the child's sociodemographic and deafness-related factors and the sociodemographic characteristics of the mothers.
The study was conducted on a group of 64 children with bilateral severe or profound sensorineural hearing loss (SNHL) who were CI users (36 children) or qualified for cochlear implantation (28 children) and their hearing mothers. The age of the children ranged from 6.5 to 47 months (M = 23.6; SD = 10.1), among whom 55% were girls (n = 35). The mothers of the children were aged 24-48 years (M = 32.7; SD = 5.3). Information was collected via the Children Development Scale (CDS), the Self-Perception of Parental Role (S-PPR), the Family Quality of Life Survey (FQOLS-2006), and an additional information questionnaire which included questions about sociodemographic variables of the child and the mother, as well as questions related to deafness, the CI, and the child's rehabilitation.
Based on results of the CDS, the deaf children were divided into two groups: those who had a low level of global psychomotor development (Low global psychomotor development subgroup - LGPD) and others with medium or high scores (Medium/high global psychomotor development subgroup - MHGPD). The mothers of deaf children in the LGPD group assessed their investment in motherhood lower than did mothers from the MHGPD group. The mothers of the LGPD group rated their satisfaction with the child's rehabilitation lower than did mothers from the MHGPD group. The two subgroups did not differ in FQOLS-2006 domains except for community interactions, which were significantly higher in the MHGPD families.
Among the determinants of the global psychomotor development of a young deaf child, the most important ones relate to the use of a CI, but maternal investment in parenting is also important. Community interactions of the family with a deaf child are also crucial, as they create a framework for social network and support for the deaf child's optimal development. Any psychological diagnosis should include, apart from psychomotor development of the deaf child, an assessment of how the mother is coping with their parenting. Mothers of deaf children, especially those with LPGD, need additional support in parenting.
目前对于聋儿的发展结果与其母亲自我感知的父母角色之间的关系，研究甚少。本研究旨在探讨接受人工耳蜗植入（CI）或有资格接受 CI 的年轻聋儿的不同整体运动发育水平是否与特定的家庭因素有关：聋儿母亲自我感知的父母角色和家庭生活质量（FQoL），以及儿童的社会人口学和耳聋相关因素和母亲的社会人口学特征。
该研究针对一组 64 名双耳重度或极重度感觉神经性听力损失（SNHL）的儿童进行，他们是 CI 用户（36 名儿童）或有资格接受耳蜗植入（28 名儿童）和他们的听力母亲。儿童的年龄为 6.5 至 47 个月（M=23.6；SD=10.1），其中 55%为女孩（n=35）。儿童的母亲年龄为 24-48 岁（M=32.7；SD=5.3）。通过儿童发展量表（CDS）、父母自我感知角色量表（S-PPR）、家庭生活质量调查（FQOLS-2006）以及包括儿童和母亲社会人口学变量以及与耳聋、CI 和儿童康复相关问题的附加信息问卷收集信息。
根据 CDS 的结果，聋儿分为两组：一组整体运动发育水平较低（低整体运动发育亚组-LGPD），另一组中等或较高（中/高整体运动发育亚组-MHGPD）。LGPD 组聋儿的母亲对自己作为母亲的投入评价低于 MHGPD 组。LGPD 组的母亲对孩子康复的满意度评价低于 MHGPD 组。除社区互动外，两个亚组在 FQOLS-2006 各领域没有差异，而 MHGPD 家庭的社区互动显著更高。
在年轻聋儿整体运动发育的决定因素中，最重要的是与使用 CI 相关，但母亲对育儿的投入也很重要。聋儿家庭的社区互动也至关重要，因为它们为聋儿的最佳发展创造了社交网络和支持的框架。任何心理诊断除了聋儿的运动发育外，还应包括对母亲如何应对育儿的评估。聋儿的母亲，尤其是 LGPD 组的母亲，需要在育儿方面得到额外的支持。
