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2
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Aging Ment Health. 2020 Mar;24(3):489-496. doi: 10.1080/13607863.2018.1544210. Epub 2019 Jan 9.
3
Perceived burden among caregivers of patients with frontotemporal degeneration in the United States.美国额颞叶变性患者照料者的感知负担。
Int Psychogeriatr. 2019 Aug;31(8):1191-1201. doi: 10.1017/S104161021800159X.
4
Version 3 of the Alzheimer Disease Centers' Neuropsychological Test Battery in the Uniform Data Set (UDS).阿尔茨海默病中心神经心理学测试电池的第 3 版(UDS)在统一数据集中。
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Associations of CAIDE Dementia Risk Score with MRI, PIB-PET measures, and cognition.CAIDE痴呆风险评分与MRI、PIB-PET测量值及认知的关联。
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Diagnosis and management of dementia with Lewy bodies: Fourth consensus report of the DLB Consortium.路易体痴呆的诊断与管理:DLB联盟第四次共识报告
Neurology. 2017 Jul 4;89(1):88-100. doi: 10.1212/WNL.0000000000004058. Epub 2017 Jun 7.
7
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The Applied Mindfulness Process Scale (AMPS): A process measure for evaluating mindfulness-based interventions.应用正念过程量表(AMPS):一种用于评估基于正念的干预措施的过程性测量工具。
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照料正负评价量表(PANAC):一种用于审视阿尔茨海默病及相关痴呆症照料经历的新测量工具。

The positive and negative appraisals of caregiving (PANAC) scale: A new measure to examine the caregiving experience in Alzheimer's disease and related dementias.

作者信息

Galvin James E, Tolea Magdalena I, Chrisphonte Stephanie

机构信息

Department of Neurology Comprehensive Center for Brain Health University of Miami Miller School of Medicine Miami Florida USA.

出版信息

Alzheimers Dement (N Y). 2020 Nov 24;6(1):e12104. doi: 10.1002/trc2.12104. eCollection 2020.

DOI:10.1002/trc2.12104
PMID:33283038
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7683961/
Abstract

INTRODUCTION

Dementia caregiving is often examined as a monolithic experience describing the challenges caregivers face, exploring one construct at a time, with little research on the positive experiences of caregiving. To address this, we developed the Positive and Negative Appraisals of Caregiving (PANAC) scale.

METHODS

PANAC was validated in 253 patient-caregiver dyads. Factor analyses revealed a two-factor solution: Positive Appraisals (PAs) and Negative Appraisals (NAs). Psychometric properties were compared with patient and caregiver characteristics and outcomes, disease stage, and etiology.

RESULTS

Internal consistency was good with Cronbach's alpha: 0.82 NA and 0.80 PA (  < 0.001). NA correlated with patient and caregiver characteristics, whereas PA correlated only with caregiver characteristics. The PA/NA ratio could be used to capture change due to an intervention.

DISCUSSION

The PANAC scale is a useful measure of the overall caregiver experience accounting for negative and positive experiences and may be used to tailor support to individual caregivers.

摘要

引言

痴呆症护理通常被视为一种单一的经历,描述护理人员所面临的挑战,每次只探究一个方面,而对护理的积极体验研究甚少。为解决这一问题,我们开发了护理正负评价量表(PANAC)。

方法

对253对患者-护理人员二元组进行了PANAC量表验证。因子分析得出了一个双因子结构:积极评价(PA)和消极评价(NA)。将心理测量特性与患者和护理人员的特征及结果、疾病阶段和病因进行了比较。

结果

Cronbach's α系数显示内部一致性良好:消极评价为0.82,积极评价为0.80(<0.001)。消极评价与患者和护理人员的特征相关,而积极评价仅与护理人员的特征相关。积极评价/消极评价比率可用于反映干预导致的变化。

讨论

PANAC量表是衡量护理人员总体体验的有用工具,兼顾了消极和积极体验,可用于为个体护理人员量身定制支持措施。