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肛门直肠畸形患者的持续护理;向成年期过渡。

Ongoing care for the patient with an anorectal malfromation; transitioning to adulthood.

机构信息

Pediatric and Adult Colorectal Surgery, Nationwide Children's Hospital, The Ohio State University, Columbus, OH, USA.

Pediatric Surgery, Cà Foncello Hospital, Treviso, Italy.

出版信息

Semin Pediatr Surg. 2020 Dec;29(6):150991. doi: 10.1016/j.sempedsurg.2020.150991. Epub 2020 Nov 8.

Abstract

Planned health care transition can improve the ability of young adults to manage their own health care to effecively use health services and ultimately maximize life-long functioning and well-being. Transitional care is a purposeful, planned process that addresses the medical, psychosocial and educational needs of adolescents and young adults with chronic physical and medical conditions as they move from child-centered to adult-oriented healthcare systems. Unsuccessful surgical transtion may result in physical and mental health implications for young patients, negative long-term outcomes and suboptimal use of health care resources. Anorectal malformation and Hirschsprung patients are an especially vulnerable patient population with ongoing surgical, physiologic and pyschosocial challenges.

摘要

计划中的医疗保健过渡可以提高年轻人管理自己的医疗保健的能力,有效利用卫生服务,并最终最大限度地提高他们一生的功能和幸福感。过渡性护理是一个有目的、有计划的过程,旨在满足患有慢性身体和医疗状况的青少年和年轻人的医疗、心理社会和教育需求,因为他们从以儿童为中心的医疗系统过渡到以成人为主导的医疗系统。不成功的手术过渡可能会对年轻患者的身心健康产生影响,导致负面的长期后果和卫生保健资源的利用不理想。肛门直肠畸形和先天性巨结肠患者是一个特别脆弱的患者群体,他们面临持续的手术、生理和心理社会挑战。

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