Department of pediatrics, Boston University School of Medicine, Boston, MA.
Department of Pediatrics, Division of Pediatric Neurology, Boston Medical Center, Boston, MA.
Semin Pediatr Neurol. 2020 Dec;36:100854. doi: 10.1016/j.spen.2020.100854. Epub 2020 Oct 26.
Inadequate preparation for transition to adult-oriented systems of care leads to gaps in treatment and can result in poor health outcomes for youth with special healthcare needs. Coordination between primary care and specialists must occur at multiple levels of organizations to improve transition for youth with neurological disorders. This review focuses on the transition process from the pediatrician's perspective, highlights common obstacles, addresses the unique needs of youth with intellectual disabilities, reviews relevant guidelines, and discusses emerging transition strategies. Key recommendations include defining the roles of the different healthcare providers and using multidisciplinary collaboration to overcome limited resources.
青少年过渡到成人医疗体系时,如果准备不充分,可能会导致治疗脱节,从而影响特殊医疗需求青少年的健康结果。为改善神经发育障碍青少年的过渡情况,初级保健医生与专科医生之间必须在组织的多个层面进行协调。本综述从儿科医生的角度出发,重点介绍常见障碍,阐述智障青少年的特殊需求,回顾相关指南,并讨论新兴过渡策略。主要建议包括明确不同医疗服务提供者的角色,利用多学科协作克服资源有限的问题。