Perelman School of Medicine of the University of Pennsylvania, Children's Hospital of Philadelphia, Philadelphia, PA.
Semin Pediatr Neurol. 2020 Dec;36:100852. doi: 10.1016/j.spen.2020.100852. Epub 2020 Oct 26.
The success of transition for children and youth with neurological disorders depends on leadership from the pediatric neurology team to encourage and support the patient's firm knowledge base of the medical condition, gradual acceptance of self-management skills and confident self-advocacy. While the foundations of effective medical transition have been effectively outlined, the challenge remains to translate from principles to practice. The Child Neurology Foundation has published open source, practical guides which are designed to facilitate the ability to structure and monitor the process through adolescence as well as to insure an effective transfer of care to adult providers. In addition, this article provides one hospital;'s efforts to integrate the transition process into the electronic medical record.
神经发育障碍儿童和青少年的过渡成功取决于儿科神经病学团队的领导力，以鼓励和支持患者对医疗状况的坚定知识基础、逐步接受自我管理技能和自信的自我倡导。虽然有效的医疗过渡的基础已经得到了有效阐述，但挑战仍然在于将原则转化为实践。儿童神经病学基金会已经发布了开源实用指南，旨在促进通过青春期来构建和监测这个过程的能力，以及确保向成年提供者进行有效的护理交接。此外，本文还介绍了一家医院将过渡过程整合到电子病历中的努力。
