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Current behavioral health and cognitive screening practices in pediatric epilepsy.儿科癫痫的现行行为健康和认知筛查实践。
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2
Adherence to antiepileptic drugs in adolescents with epilepsy.青少年癫痫患者对抗癫痫药物的依从性。
Epilepsy Behav. 2018 Mar;80:307-311. doi: 10.1016/j.yebeh.2017.12.013. Epub 2018 Feb 9.
3
Validation of the PedsQL Epilepsy Module: A pediatric epilepsy-specific health-related quality of life measure.儿童癫痫生活质量量表(PedsQL癫痫模块)的验证:一项针对儿童癫痫的特定健康相关生活质量测量工具。
Epilepsia. 2017 Nov;58(11):1920-1930. doi: 10.1111/epi.13875. Epub 2017 Sep 13.
4
National and State Estimates of the Numbers of Adults and Children with Active Epilepsy - United States, 2015.2015年美国成人及儿童活动性癫痫患者数量的全国及各州估计数据
MMWR Morb Mortal Wkly Rep. 2017 Aug 11;66(31):821-825. doi: 10.15585/mmwr.mm6631a1.
5
Development of a web-based executive functioning intervention for adolescents with epilepsy: The Epilepsy Journey.为癫痫青少年开发基于网络的执行功能干预措施:癫痫之旅。
Epilepsy Behav. 2017 Jul;72:114-121. doi: 10.1016/j.yebeh.2017.04.009. Epub 2017 Jun 7.
6
A Randomized-Controlled Trial of Social Norm Interventions to Increase Physical Activity.一项增加身体活动的社会规范干预随机对照试验。
Ann Behav Med. 2017 Oct;51(5):642-651. doi: 10.1007/s12160-017-9887-z.
7
Strategies for improving adherence to antiepileptic drug treatment in people with epilepsy.提高癫痫患者抗癫痫药物治疗依从性的策略。
Cochrane Database Syst Rev. 2017 Feb 3;2(2):CD008312. doi: 10.1002/14651858.CD008312.pub3.
8
Efficacy of a web- and text messaging-based intervention to reduce problem drinking in adolescents: Results of a cluster-randomized controlled trial.一项基于网络和短信的干预措施减少青少年酗酒问题的效果:一项整群随机对照试验的结果
J Consult Clin Psychol. 2017 Feb;85(2):147-159. doi: 10.1037/ccp0000138. Epub 2016 Sep 8.
9
Preliminary feasibility and efficacy of text messaging and application-based adherence interventions in adolescents with epilepsy.短信及基于应用程序的依从性干预措施在青少年癫痫患者中的初步可行性和疗效
Epilepsy Behav. 2016 Oct;63:46-49. doi: 10.1016/j.yebeh.2016.07.036. Epub 2016 Aug 24.
10
Development of the PedsQL™ Epilepsy Module: Focus group and cognitive interviews.儿童癫痫生活质量量表(PedsQL™)癫痫模块的开发:焦点小组和认知访谈。
Epilepsy Behav. 2016 Sep;62:115-20. doi: 10.1016/j.yebeh.2016.06.011. Epub 2016 Jul 23.

青少年癫痫患者社会规范依从性干预措施的制定。

The development of a social norms adherence intervention for adolescents with epilepsy.

机构信息

Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, 3333 Burnet Ave., Cincinnati, OH 45229-3039, USA; University of Cincinnati, College of Medicine, USA.

Nationwide Children's Hospital, 700 Children's Drive, Near East Office Building, 3rd Floor, Columbus, OH 43205, USA; The Ohio State, Department of Pediatrics, 700 Children's Drive, Near East Office Building, 3rd Floor, Columbus, OH 43205, USA.

出版信息

Epilepsy Behav. 2021 Jan;114(Pt A):107628. doi: 10.1016/j.yebeh.2020.107628. Epub 2020 Dec 9.

DOI:10.1016/j.yebeh.2020.107628
PMID:33309237
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7855277/
Abstract

INTRODUCTION

Adherence is suboptimal in adolescents with epilepsy. Social norms comparison (i.e., feedback about someone else's behavior related to one's own behavior) strategies may be beneficial in improving medication adherence. Using a novel model of behavioral intervention development, the aim of the current study was to create a social norms intervention for adolescents with epilepsy via focus groups and usability studies.

METHODS

A focus group, individual interviews, short-term usability, and extended usage testing studies were conducted. Across all study phases, content and images of intervention components were displayed to participants as mock-ups in PowerPoint slide decks. After each phase, updated iterations were shown to participants to refine the intervention. Several questionnaires were completed by adolescents and caregivers to characterize the samples.

RESULTS

Twelve adolescents participated in the focus group/individual interviews and usability studies. The final Behavioral Economic Adherence for Teens (BEAT) intervention consists of a text messaging system and a graphical user interface. General feedback indicated the need for simplicity and ease of use regarding obtaining the graphical messages (e.g., no extra login and passwords); engaging visual images; and weekly comparisons of a target patient's medication adherence to other adolescents' performance. The average system usability system (SUS) rating was 88.3 + 3.8.

CONCLUSIONS

Our final intervention had high usability ratings and was perceived as engaging and easy to understand. An important next step is to test the BEAT intervention in a Phase 2 randomized trial.

摘要

简介

青少年癫痫患者的依从性并不理想。社会规范比较(即关于他人行为与自身行为相关的反馈)策略可能有助于提高药物依从性。本研究采用一种新的行为干预措施开发模型,通过焦点小组和可用性研究,为青少年癫痫患者创建一种社会规范干预措施。

方法

进行了焦点小组、个人访谈、短期可用性和扩展使用测试研究。在所有研究阶段,参与者都以 PowerPoint 幻灯片的形式查看了干预措施组成部分的内容和图像。在每个阶段之后,都会向参与者展示更新的迭代版本,以完善干预措施。青少年和照顾者完成了几个问卷,以描述样本。

结果

12 名青少年参加了焦点小组/个人访谈和可用性研究。最终的行为经济学青少年依从性(BEAT)干预措施包括短信系统和图形用户界面。一般反馈表明,在获取图形消息(例如,无需额外的登录名和密码)、使用吸引人的图像以及每周将目标患者的药物依从性与其他青少年的表现进行比较方面,需要简单易用。平均系统可用性系统(SUS)评分 88.3±3.8。

结论

我们的最终干预措施具有较高的可用性评分,被认为具有吸引力且易于理解。下一步重要的是在一项 2 期随机试验中测试 BEAT 干预措施。