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脑瘫患者上肢重建的障碍。

Barriers to Upper Extremity Reconstruction for Patients With Cerebral Palsy.

机构信息

Indiana University School of Medicine, Indianapolis, USA.

出版信息

Hand (N Y). 2022 Sep;17(5):926-932. doi: 10.1177/1558944720976413. Epub 2020 Dec 15.

DOI:10.1177/1558944720976413
PMID:33319587
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9465801/
Abstract

BACKGROUND

Reconstructive surgery for upper extremity manifestations of cerebral palsy (CP) has been demonstrated to be safe and effective, yet many potential candidates are never evaluated for surgery. The purpose of this study was to determine barriers to upper extremity reconstruction for patients with CP in a cohort of upper extremity surgeons and nonsurgeons.

METHODS

We sent a questionnaire to 4167 surgeons and nonsurgeon physicians, aggregated responses, and analyzed for differences in perceptions regarding surgical efficacy, patient candidacy for surgery, compliance with rehabilitation, remuneration, complexity of care, and physician comfort providing care.

RESULTS

Surgeons and nonsurgeons did not agree on the literature support of surgical efficacy (73% vs 35% agree or strongly agree, respectively). Both surgeons and nonsurgeons felt that many potential candidates exist, yet there was variability in their confidence in identifying them. Most surgeons (59%) and nonsurgeons (61%) felt comfortable performing surgery and directing the associated rehabilitation, respectively. Neither group reported that patient compliance, access to rehabilitation services, and available financial resources were a major barrier, but surgeons were more likely than nonsurgeons to feel that remuneration for services was inadequate (37% vs 13%). Both groups agreed that surgical treatments are complex and should be performed in the setting of a multidisciplinary team.

CONCLUSIONS

Surgeons and nonsurgeons differ in their views regarding upper extremity reconstructive surgery for CP. Barriers to reconstruction may be addressed by performing higher level research, implementing multispecialty educational outreach, developing objective referral criteria, increasing surgical remuneration, improving access to trained upper extremity surgeons, and implementing multidisciplinary CP clinics.

摘要

背景

脑瘫(CP)上肢表现的重建手术已被证明是安全有效的,但许多潜在的候选者从未接受过手术评估。本研究的目的是在一组上肢外科医生和非外科医生中确定 CP 患者上肢重建的障碍因素。

方法

我们向 4167 名外科医生和非外科医生发放了一份问卷,汇总了回复并进行了分析,以了解他们对手术疗效、手术候选者、康复依从性、薪酬、护理复杂性以及提供护理的医生舒适度的看法存在差异。

结果

外科医生和非外科医生对手术疗效的文献支持意见不一(分别有 73%和 35%表示同意或强烈同意)。外科医生和非外科医生都认为有许多潜在的候选者,但他们对识别这些候选者的信心存在差异。大多数外科医生(59%)和非外科医生(61%)分别表示愿意进行手术并指导相关康复。两个组都没有报告患者依从性、获得康复服务的机会和可用的财务资源是主要障碍,但外科医生比非外科医生更有可能认为服务报酬不足(37%比 13%)。两个组都认为手术治疗复杂,应在多学科团队的环境中进行。

结论

外科医生和非外科医生对 CP 上肢重建手术的看法存在差异。通过进行更高水平的研究、实施多专业教育推广、制定客观的转诊标准、增加手术报酬、增加接受过上肢外科培训的外科医生数量以及实施多学科 CP 诊所,可以解决重建的障碍。

相似文献

1
Barriers to Upper Extremity Reconstruction for Patients With Cerebral Palsy.脑瘫患者上肢重建的障碍。
Hand (N Y). 2022 Sep;17(5):926-932. doi: 10.1177/1558944720976413. Epub 2020 Dec 15.
2
Effects of Upper-Extremity Surgery on Manual Performance of Children and Adolescents with Cerebral Palsy: A Multidisciplinary Approach Using Shared Decision-Making.上肢手术对脑瘫儿童和青少年手功能的影响:采用共享决策的多学科方法。
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Tendon transfer surgery in upper-extremity cerebral palsy is more effective than botulinum toxin injections or regular, ongoing therapy.上肢脑瘫的肌腱转移手术比肉毒杆菌毒素注射或常规持续治疗更有效。
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本文引用的文献

1
Prevalence of high-burden medical conditions and health care resource utilization and costs among adults with cerebral palsy.脑瘫成人中高负担医疗状况的患病率、医疗资源利用情况及费用
Clin Epidemiol. 2019 Jun 19;11:469-481. doi: 10.2147/CLEP.S205839. eCollection 2019.
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Prevalence, Patterns, and Cost of Care for Children with Cerebral Palsy Enrolled in Medicaid Managed Care.医疗补助管理式医疗中脑瘫患儿的患病率、模式和照护费用。
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Selective Neurectomy for the Spastic Upper Extremity.痉挛性上肢的选择性神经切除术
Hand Clin. 2018 Nov;34(4):537-545. doi: 10.1016/j.hcl.2018.06.010.
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Surgical Management of Spasticity of the Elbow.肘部痉挛的手术治疗
Hand Clin. 2018 Nov;34(4):503-510. doi: 10.1016/j.hcl.2018.06.007. Epub 2018 Aug 20.
5
Surgical Management of Spasticity of the Forearm and Wrist.前臂和手腕痉挛的手术治疗
Hand Clin. 2018 Nov;34(4):487-502. doi: 10.1016/j.hcl.2018.06.006.
6
Surgical Management of Spasticity of the Thumb and Fingers.拇指和手指痉挛的手术治疗
Hand Clin. 2018 Nov;34(4):473-485. doi: 10.1016/j.hcl.2018.06.005.
7
Common Etiologies of Upper Extremity Spasticity.上肢痉挛的常见病因。
Hand Clin. 2018 Nov;34(4):437-443. doi: 10.1016/j.hcl.2018.06.001. Epub 2018 Aug 18.
8
Effects of Upper-Extremity Surgery on Manual Performance of Children and Adolescents with Cerebral Palsy: A Multidisciplinary Approach Using Shared Decision-Making.上肢手术对脑瘫儿童和青少年手功能的影响:采用共享决策的多学科方法。
J Bone Joint Surg Am. 2018 Aug 15;100(16):1416-1422. doi: 10.2106/JBJS.17.01382.
9
Wrist arthrodesis in adolescents with cerebral palsy.青少年脑瘫患者的腕关节融合术。
J Hand Surg Eur Vol. 2016 Sep;41(7):758-62. doi: 10.1177/1753193415625611. Epub 2016 Jan 14.
10
Tendon transfer surgery in upper-extremity cerebral palsy is more effective than botulinum toxin injections or regular, ongoing therapy.上肢脑瘫的肌腱转移手术比肉毒杆菌毒素注射或常规持续治疗更有效。
J Bone Joint Surg Am. 2015 Apr 1;97(7):529-36. doi: 10.2106/JBJS.M.01577.