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丹麦脊髓损伤肩部(DanSCIS)队列研究:方法学和初步结果。

The Danish Spinal Cord Injury Shoulder (DanSCIS) cohort: methodology and primary results.

机构信息

Department of Sports Science and Clinical Biomechanics, University of Southern Denmark, Odense, Denmark.

Health Sciences Research Centre, UCL University College, Odense, Denmark.

出版信息

Spinal Cord. 2021 Jul;59(7):821-831. doi: 10.1038/s41393-020-00594-1. Epub 2020 Dec 15.

DOI:10.1038/s41393-020-00594-1
PMID:33323964
Abstract

STUDY DESIGN

Cross-sectional study.

OBJECTIVES

To describe the socio-demographics, injury characteristics, prevalence of shoulder and neck symptoms, weekly participation in leisure time physical activity (LTPA) and quality of life (QoL) of individuals with spinal cord injury in Denmark (SCI).

SETTING

Nation-wide community survey, Denmark.

METHODS

Individuals with SCI for >2 years were included from three SCI rehabilitation departments. Questionnaire data regarding socio-demographic details, SCI injury characteristics, medical history, shoulder and neck symptoms, LTPA and QoL were collected.

RESULTS

Of 2454 potential participants, 1517 (62%) responded to the survey (mean age = 56.2, SD 16.1, 37% female, 42% tetraplegia, 23% complete SCI, mean time since injury = 16.9, SD 13.5). 75% used some form of assistive mobility device. Responders and non-responders showed no sex or injury type/severity differences. Shoulder and neck symptoms within the past 3 months were reported by 63 and 67% respectively, with 51% reporting shoulder symptoms within the past week. Among those with symptoms, 61% had experienced shoulder symptoms and 56% neck symptoms, for more than 30 days during the previous 3 months. Symptoms often prevented participants from performing their usual activities (due to shoulder symptoms 46%, neck symptoms 41%).

CONCLUSIONS

A high prevalence of self-reported shoulder and neck symptoms was found, which may limit physical function and social activities. We succeeded in generating the Danish Spinal Cord Injury Shoulder (DanSCIS) dataset, which comprised a substantial proportion of Danish adults with SCI. Future studies using data from this cohort will investigate patterns and associations between shoulder/neck symptoms, use of assistive mobility devices, LTPA and QoL.

摘要

研究设计

横断面研究。

目的

描述丹麦脊髓损伤患者的社会人口统计学特征、损伤特征、肩颈症状的患病率、每周参与休闲时间体力活动(LTPA)的情况以及生活质量(QoL)。

设置

丹麦全国社区调查。

方法

从三个脊髓损伤康复部门中招募了患有脊髓损伤超过 2 年的患者。收集了有关社会人口统计学详细信息、脊髓损伤损伤特征、病史、肩颈症状、LTPA 和生活质量的问卷数据。

结果

在 2454 名潜在参与者中,有 1517 名(62%)对调查做出了回应(平均年龄为 56.2,标准差为 16.1,37%为女性,42%为四肢瘫痪,23%为完全性脊髓损伤,平均受伤时间为 16.9,标准差为 13.5)。75%的人使用某种形式的辅助移动设备。应答者和未应答者在性别或损伤类型/严重程度方面没有差异。过去 3 个月内分别有 63%和 67%的人报告有肩颈症状,其中 51%的人在过去一周内有肩颈症状。在有症状的患者中,61%的人有肩颈症状,56%的人有颈症状,在过去 3 个月中,有超过 30 天的症状。这些症状经常使参与者无法进行日常活动(由于肩颈症状,分别有 46%和 41%的人)。

结论

研究发现,有很高的自我报告的肩颈症状患病率,这可能会限制身体功能和社会活动。我们成功地生成了丹麦脊髓损伤肩颈(DanSCIS)数据集,其中包括相当一部分丹麦成年脊髓损伤患者。未来的研究将使用该队列的数据,调查肩颈症状、辅助移动设备的使用、LTPA 和 QoL 之间的模式和关联。

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Reproducibility of the international spinal cord injury quality of life basic data set: an international psychometric study.国际脊髓损伤生活质量基本数据集的可重复性:一项国际心理测量学研究。
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