Center of Excellence for Rehabilitation Medicine, Brain Center Rudolf Magnus, University Medical Center Utrecht, University Utrecht and De Hoogstraat Rehabilitation, Utrecht, The Netherlands.
University of Groningen, University Medical Center Groningen, Center for Rehabilitation, Department of Rehabilitation Medicine, Groningen, The Netherlands.
Spinal Cord. 2019 Nov;57(11):992-998. doi: 10.1038/s41393-019-0302-4. Epub 2019 Jun 5.
Psychometric study.
To examine the reproducibility of the international spinal cord injury quality of life basic data set (QoL-BDS) in an international sample of community-dwelling adults with spinal cord injury or disease (SCI/SCD) and in subgroups with respect to age (< 50 vs. ≥ 50 years) and etiology.
Outpatient rehabilitation clinics and community.
Participants were people living with SCI/D in four countries, at least 1 year post onset and at least 18 years of age. The QoL-BDS consists of three items on satisfaction with life as a whole, physical health and psychological health rated on a 0-10 numerical rating scale. A fourth item on satisfaction with social life was included based on feedback from participants.
A total of 79 people were included. Median age was 52 years. Most participants (69.6%) had SCI, paraplegia (53%), and 40.5% reported a motor complete injury. Median time between tests was 14 days (range 4-27). Intra-class correlation (ICC) values of the items ranged from 0.66 to 0.80. ICC values of the three-item and four-item total scores were identical and good (0.83; 95% CI 0.75-0.89). Subgroup analyses showed ICC values ranging from 0.76 to 0.83. Bland-Altman plots suggested no bias for the three-item total score, but some bias for the four-item total score. The limits of agreement of both scores were similar, wide at individual level and small at group level.
This study provides evidence of reproducibility of the current version of the QoL-BDS. When adding a fourth item, reproducibility was maintained.
心理测量研究。
在国际社区居住的脊髓损伤/疾病（SCI/D）成人样本中，以及在年龄（<50 岁与≥50 岁）和病因亚组中，检验国际脊髓损伤生活质量基本数据集（QoL-BDS）的再现性。
门诊康复诊所和社区。
参与者为四个国家的 SCI/D 患者，发病后至少 1 年，年龄至少 18 岁。QoL-BDS 由三个项目组成，分别为对生活总体满意度、身体健康和心理健康的评分（0-10 数字评分量表）。根据参与者的反馈，纳入了第四个关于社会生活满意度的项目。
共纳入 79 人，中位年龄为 52 岁。大多数参与者（69.6%）为 SCI，截瘫（53%），40.5%的人报告为完全运动损伤。两次测试之间的中位时间为 14 天（范围 4-27）。各项目的组内相关系数（ICC）值为 0.66 至 0.80。三项目和四项目总分的 ICC 值相同，为良好（0.83；95%置信区间 0.75-0.89）。亚组分析显示 ICC 值范围为 0.76 至 0.83。Bland-Altman 图表明三项目总分无偏倚，但四项目总分存在一些偏倚。两个评分的一致性界限相似，个体水平较宽，群体水平较小。
本研究提供了当前版本 QoL-BDS 再现性的证据。当添加第四个项目时，再现性得以维持。
Zotero 插件