Huber J, Karschuck P, Groeben C, Thomas C, Praus F, Miernik A, Gratzke C, Alpers Georg W, Kriegmair M, Michel M S
Klinik und Poliklinik für Urologie, Medizinische Fakultät Carl Gustav Carus, TU Dresden, Fetscherstraße 74, 01307, Dresden, Deutschland.
Medizinische Fakultät, Klinik für Urologie, Universitätsklinikum Freiburg, Hugstetterstr. 55, 79106, Freiburg, Deutschland.
Urologe A. 2021 Jan;60(1):45-51. doi: 10.1007/s00120-020-01415-2. Epub 2020 Dec 17.
Patient empowerment includes measures that promote their autonomy and self-determination in the physician-patient relationship. In addition to successful medical treatment, goals include long-term treatment satisfaction and the best possible quality of life for the patients and their social environment. Various initiatives and projects from German urology are already used to empower our patients. Entscheidungshilfe Prostatakrebs (decision aid for prostate cancer) and the German language decision aid for advanced bladder cancer and for the choice of urinary diversion are implemented under the umbrella of the PatientenAkademie (patient academy) of German Urologists. With more than 12,000 users, Entscheidungshilfe Prostatakrebs is very well established in urological care in Germany. The randomized evaluation study with planned 1200 participants is close to the successful completion of recruitment. Another project from the German urology sector is the project "antiCoagulation Help App for SurgERy" (CHASER). The aim is to develop a smartphone-based decision aid for the perioperative management of patients undergoing antithrombotic therapy. Online support groups can also contribute to empowerment and have been analyzed systematically for prostate cancer patients. A large randomized study on this topic is currently in preparation. Continuing advances in digitalization can thus provide us with useful support in order to provide individual information to our patients. The German Urological Association and its PatientenAkademie have been committed to this for many years.
患者赋权包括在医患关系中促进患者自主性和自我决定权的措施。除了成功的医疗治疗外,目标还包括长期的治疗满意度以及患者及其社会环境尽可能好的生活质量。德国泌尿外科的各种倡议和项目已被用于增强我们患者的权能。前列腺癌决策辅助工具(Entscheidungshilfe Prostatakrebs)以及德语版的晚期膀胱癌决策辅助工具和尿流改道选择决策辅助工具是在德国泌尿外科医生患者学院(PatientenAkademie)的框架下实施的。前列腺癌决策辅助工具拥有超过12000名用户,在德国泌尿外科护理领域已非常成熟。计划招募1200名参与者的随机评估研究即将成功完成招募。德国泌尿外科领域的另一个项目是“外科手术抗凝帮助应用程序”(antiCoagulation Help App for SurgERy,CHASER)。其目的是开发一种基于智能手机的决策辅助工具,用于接受抗血栓治疗患者的围手术期管理。在线支持小组也有助于增强权能,并且已经针对前列腺癌患者进行了系统分析。目前正在筹备一项关于该主题的大型随机研究。数字化的持续进步因此可以为我们提供有用的支持,以便为我们的患者提供个性化信息。德国泌尿外科学会及其患者学院多年来一直致力于此。