Division of Neurology, Department of Medicine, The University of British Columbia, and BC Children's & Women's Hospitals, Canada.
5620The McGill University Research Center for Studies in Aging, Canada.
Dementia (London). 2021 Apr;20(3):1182-1186. doi: 10.1177/1471301220981241. Epub 2020 Dec 19.
Dementia research is critical to improve dementia care; however, participation in this research remains limited, and recruitment is challenging. During an international panel at the 2018 Alzheimer Disease International Conference in Chicago, presentations were given to raise the profile of dementia research and share the patient experience of research participation. We observed notable shifts in perspectives on research participation from 39 participants who completed a survey before and after the presentations. These findings set the stage for future studies exploring the strength of independent motivations for research participation as well as improving recruitment efforts through education and peer support.
痴呆症研究对于改善痴呆症护理至关重要;然而,人们对这项研究的参与仍然有限,招募工作也具有挑战性。在 2018 年芝加哥阿尔茨海默病国际会议的一个国际小组讨论会上,有人作了专题介绍,以提高对痴呆症研究的认识,并分享患者参与研究的经验。我们观察到,39 名参与者在专题介绍前后完成了一项调查,他们对研究参与的看法发生了显著变化。这些发现为未来的研究奠定了基础,这些研究将探索独立参与研究动机的强度,并通过教育和同伴支持来改善招募工作。