从母亲的叙述看儿科慢性病患儿的生活体验：关于父母对疾病掌控感的临床访谈
The experience of living with a chronic disease in pediatrics from the mothers' narratives: The Clinical Interview on Parental Sense of Grip on the Disease.
作者信息
Savarese Livia, Freda Maria Francesca, De Luca Picione Raffaele, Dolce Pasqaule, De Falco Raffaella, Alessio Maria, Cancian Mauro, Franzese Adriana, Guarino Maria Domenica, Perricone Roberto, Petraroli Angelica, Senter Riccardo, Traverso Claudia, Zanichelli Andrea, Zito Eugenio, Bova Maria
机构信息
Department of Humanities, University of Naples Federico II, Italy.
University Giustino Fortunato, Italy.
出版信息
Health Psychol Open. 2020 Dec 8;7(2):2055102920971496. doi: 10.1177/2055102920971496. eCollection 2020 Jul-Dec.
The Clinical Interview on the Sense of Grip on Chronic Disease has been administered to 68 mothers of children affected by Hereditary Angioedema (C1-Inh HAE), Type 1 Diabetes (T1D), Juvenile Rheumatoid Arthritis (JRA). The objectives are to detect general features of the experience of parenting children with chronic illness as well as the specificities of this experience related to the different conditions. Four Profiles of Sense of Grip were identified: Adempitive, Controlling, Reactive, Dynamic. The Sense of Grip Interview is an effective clinical tool for understanding the characteristics of the disease in daily life, which can help clinicians to encourage family adjustment to disease.
针对慢性病掌控感的临床访谈已施用于68位患有遗传性血管性水肿（C1 - 抑制物缺乏性遗传性血管性水肿，HAE）、1型糖尿病（T1D）、青少年类风湿性关节炎（JRA）患儿的母亲。目的是检测养育慢性病患儿经历的一般特征以及与不同病症相关的该经历的特殊性。确定了四种掌控感类型：适应性、控制性、反应性、动态性。掌控感访谈是了解疾病在日常生活中特征的有效临床工具，可帮助临床医生鼓励家庭适应疾病。
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