患者想知道的，以及我们实际告诉他们的：ABIDE项目。
What patients want to know, and what we actually tell them: The ABIDE project.
作者信息
Fruijtier Agnetha D, Visser Leonie N C, Bouwman Femke H, Lutz Rogier, Schoonenboom Niki, Kalisvaart Kees, Hempenius Liesbeth, Roks Gerwin, Boelaarts Leo, Claus Jules J, Kleijer Mariska, de Beer Marlijn, van der Flier Wiesje M, Smets Ellen M A
机构信息
Department of Neurology Alzheimer Center Amsterdam Amsterdam Neuroscience Amsterdam UMC Vrije Universiteit Amsterdam Amsterdam the Netherlands.
Department of Medical Psychology Academic Medical Center Amsterdam UMC Amsterdam Public Health Research Institute Amsterdam the Netherlands.
出版信息
Alzheimers Dement (N Y). 2020 Dec 16;6(1):e12113. doi: 10.1002/trc2.12113. eCollection 2020.
BACKGROUND
We studied to what degree and at whose initiative 25 informational topics, formerly identified as important, are discussed in diagnostic consultations.
METHODS
Audio recordings of clinician-patient consultations of 71 patients and 32 clinicians, collected in eight Dutch memory clinics, were independently content-coded by two coders. The coding scheme encompassed 25 informational topics.
RESULTS
Approximately half (= 12) of the 25 topics were discussed per patient during the diagnostic process, with a higher frequency among individuals receiving a dementia diagnosis (= 14) compared to others (= 11). Individual topics ranged from being discussed with 2/71 (3%) to 70/71 (99%) of patients. Patients and/or care partners rarely initiated topic discussion (10%). When they did, they often enquired about one of the least frequently addressed topics.
CONCLUSION
Most patients received information on approximately half of the important informational topics. Providing the topic list to patients and care partners beforehand could allow consultation preparation and stimulate participation.
背景
我们研究了在诊断性会诊中，之前确定为重要的25个信息主题在多大程度上以及由谁主动进行讨论。
方法
从荷兰八家记忆诊所收集的71名患者和32名临床医生的医患会诊录音，由两名编码员独立进行内容编码。编码方案涵盖25个信息主题。
结果
在诊断过程中，每位患者大约讨论了25个主题中的一半（=12个），与其他患者（=11个）相比，被诊断为痴呆症的个体讨论频率更高（=14个）。各个主题的讨论患者比例从2/71（3%）到70/71（99%）不等。患者和/或护理伙伴很少主动发起主题讨论（10%）。当他们这样做时，通常会询问最不常涉及的主题之一。
结论
大多数患者获得了约一半重要信息主题的信息。事先向患者和护理伙伴提供主题清单可以让他们为会诊做准备并促进参与。
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