通过旅程图确定乳腺癌患者体验：一项定性研究方案。
Ascertaining breast cancer patient experiences through a journey map: A qualitative study protocol.
机构信息
Clinical Psychology and Psychobiology Department, Faculty of Psychology, University of Barcelona, Barcelona, Spain.
Medical Oncology Department, Hospital Universitario Central of Asturias, Oviedo, Spain.
出版信息
PLoS One. 2020 Dec 21;15(12):e0244355. doi: 10.1371/journal.pone.0244355. eCollection 2020.
BACKGROUND
The current cancer care system must be improved if we are to have in-depth knowledge about breast cancer patients' experiences throughout all the stages of their disease.
AIM
This study seeks to describe breast cancer patients' experience over the course of the various stages of illness by means of a journey model.
METHODS
This is a qualitative descriptive study. Individual, semi-structured interviews will be administered to women with breast cancer and breast cancer survivors. Patients will be recruited from nine large hospitals in Spain and intentional sampling will be used. Data will be collected by means of a semi-structured interview that was elaborated with the help of medical oncologists, nurses, and psycho-oncologists. Data will be processed adopting a thematic analysis approach.
DISCUSSION
The outcomes of this study will afford new insights into breast cancer patients' experiences, providing guidance to improve the care given to these individuals. This protocol aims to describe the journey of patients with breast cancer through the healthcare system to establish baseline data that will serve as the basis for the development and implementation of a patient-centered, evidence-based clinical pathway.
背景
如果我们要深入了解乳腺癌患者在疾病各个阶段的经历，就必须改进当前的癌症护理系统。
目的
本研究旨在通过旅程模型描述乳腺癌患者在疾病各个阶段的体验。
方法
这是一项定性描述性研究。将对患有乳腺癌和乳腺癌幸存者的女性进行个体、半结构化访谈。患者将从西班牙的 9 家大医院招募，并采用目的性抽样。将通过半结构化访谈收集数据，该访谈是在肿瘤内科医生、护士和心理肿瘤学家的帮助下精心设计的。将采用主题分析方法处理数据。
讨论
本研究的结果将为乳腺癌患者的体验提供新的见解，为改善对这些患者的护理提供指导。本方案旨在通过描述乳腺癌患者在医疗保健系统中的旅程，建立基线数据，为开发和实施以患者为中心、基于证据的临床路径奠定基础。
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