Department of Haematology and Oncology, Stavanger University Hospital, Stavanger, Norway.
Department of Anaesthesiology and Intensive Care, Stavanger University Hospital, Stavanger, Norway.
J Clin Nurs. 2019 Aug;28(15-16):3012-3020. doi: 10.1111/jocn.14700. Epub 2019 May 2.
To describe breast cancer (BC) survivors' experiences of participating in a 2-day educational programme (Breast Cancer School, BCS) and their critical reflection on information received during and after adjuvant treatment. The following research questions guided the study. How do BC survivors experience their participation in an educational programme? How do BC survivors experience the information trajectory during and after adjuvant treatment?
BC is the most prevalent cancer among women in Norway. BC survivors have a substantial need for information about the disease, treatment and recovery. During the past few years, BC treatment in Norway has changed from inpatient- to outpatient-based treatment. Oncology nurses and oncologists are obliged to provide patients and their families with information, which has necessitated reorganisation of the procedures for providing information. New arenas such as the Breast Cancer School (BCS) offer the opportunity to learn from experts and fellow patients.
Qualitative, descriptive design.
Focus groups with 20 BC survivors after having participated in the BCS were used to enable critical reflection. The COREQ checklist was followed to ensure rigour in the study.
Two themes emerged from qualitative analysis: Balancing between the need for and the fear of information and Moving from a safe structure to lonely recovery. We identified differences between BC survivors in diversity, uniqueness and need for information. Continuity and expert knowledge provided by a primary oncology nurse and oncologists were highlighted as important.
The study reveals the need for information tailored to each BC survivor's unique needs. The BC survivors expressed both the need for and the fear of information. BCS takes both a systematic and individual approach to provide expert information, dialog and the opportunity to meet with fellow patients. The transition from the structure of the treatment to lonely recovery after the most intensive treatment was perceived as unsafe and challenging. BC patients' experiences must be continuously valued and used to improve educational programmes, care and treatment. Oncology nurses play an important part in the information chain and continuity.
This study highlights the importance of including BC survivors in the design and evaluation of educational programmes. The provision of information and supportive care with continuity between oncology nurses and oncologists through the trajectory of treatment and care is crucial.
描述乳腺癌（BC）幸存者参与为期两天的教育计划（乳腺癌学校，BCS）的体验，以及他们对辅助治疗期间和之后所接受信息的批判性反思。本研究的以下研究问题为指导。BC 幸存者如何体验他们参与教育计划？BC 幸存者如何体验辅助治疗期间和之后的信息轨迹？
乳腺癌是挪威女性中最常见的癌症。BC 幸存者对疾病、治疗和康复的信息有很大的需求。在过去的几年中，挪威的 BC 治疗已从住院治疗转变为门诊治疗。肿瘤护士和肿瘤医生有义务为患者及其家属提供信息，这需要重新组织提供信息的程序。乳腺癌学校（BCS）等新领域为向专家和其他患者学习提供了机会。
定性、描述性设计。
使用 20 名参加 BCS 后的 BC 幸存者的焦点小组，使他们能够进行批判性反思。遵循 COREQ 清单以确保研究的严谨性。
从定性分析中出现了两个主题：在信息需求和恐惧之间取得平衡，以及从安全的结构转变为孤独的康复。我们发现 BC 幸存者在多样性、独特性和信息需求方面存在差异。初级肿瘤护士和肿瘤医生提供的连续性和专业知识被强调为重要。
该研究揭示了根据每位 BC 幸存者的独特需求量身定制信息的必要性。BC 幸存者既需要信息，又对信息感到恐惧。BCS 采取系统和个体化的方法提供专家信息、对话和与其他患者见面的机会。从治疗的结构向最密集治疗后的孤独康复过渡被认为是不安全和具有挑战性的。必须不断重视和利用 BC 患者的经验来改善教育计划、护理和治疗。肿瘤护士在信息链和连续性中发挥着重要作用。
本研究强调了将 BC 幸存者纳入教育计划的设计和评估的重要性。在治疗和护理过程中通过肿瘤护士和肿瘤医生的连续性提供信息和支持性护理至关重要。
