Department of Psychiatry and Behavioral Sciences, Northwestern University, Chicago, IL.
Department of Psychiatry and Behavioral Sciences, Northwestern University, Chicago, IL.
J Pediatr. 2021 Apr;231:168-177.e1. doi: 10.1016/j.jpeds.2020.12.060. Epub 2020 Dec 25.
To assess the impact of the novel coronavirus disease 2019 (COVID-19) pandemic on the delivery of, and parent satisfaction with, therapy services for children with disabilities in early intervention, school, and outpatient settings.
There were 207 parents of children with disabilities who completed a web-based survey about their child[ren]'s access to, and satisfaction with, therapy services during COVID-19. Parents also completed the Family-Provider Partnership Scale and the Telehealth Satisfaction Scale. Satisfaction was compared between families receiving therapies in school, early intervention, outpatient, and multiple settings.
Forty-four percent of parents reported low satisfaction with their child[ren]'s therapy services during the pandemic. Access to telehealth positively predicted overall satisfaction and satisfaction with the family-provider partnership, whereas receiving school-based therapies negatively predicted overall satisfaction and satisfaction with the family-provider partnership.
School-based therapies are legally mandated for eligible students, free of cost to families, integrated in the academic setting, and less burdensome on parents than other services. Thus, given the disparity in parental satisfaction regarding school-based service delivery, addressing therapy delivery in school-based settings during the duration of COVID-19 is critical for preventing increased disparities and more effectively meeting children's needs. Telehealth seems to be a promising option for continuing high-quality services during the duration of the COVID-19 pandemic and for families who face barriers in accessing services in general. Future studies are warranted with larger and more diverse samples, as well as longitudinal studies that monitor service access and parent satisfaction throughout the remainder of the pandemic.
评估 2019 年新型冠状病毒病（COVID-19）大流行对残疾儿童早期干预、学校和门诊环境中的治疗服务的提供以及家长满意度的影响。
共有 207 名残疾儿童家长完成了一项关于他们的孩子在 COVID-19 期间接受治疗服务的机会和满意度的网络调查。家长还完成了家庭-提供者伙伴关系量表和远程医疗满意度量表。比较了在学校、早期干预、门诊和多种环境中接受治疗的家庭的满意度。
44%的家长报告说，他们的孩子在大流行期间的治疗服务满意度较低。接受远程医疗服务与整体满意度和家庭-提供者伙伴关系满意度呈正相关，而接受学校为基础的治疗与整体满意度和家庭-提供者伙伴关系满意度呈负相关。
对于符合条件的学生来说，学校为基础的治疗是法律规定的，对家庭免费，与学术环境相结合，而且比其他服务对家长的负担更小。因此，鉴于家长对学校提供的服务的满意度存在差异，在 COVID-19 期间解决学校提供的治疗服务至关重要，以防止差距进一步扩大，并更有效地满足儿童的需求。远程医疗似乎是在 COVID-19 大流行期间继续提供高质量服务以及为那些在一般情况下难以获得服务的家庭提供服务的一个有前途的选择。未来的研究需要更大、更多样化的样本，以及监测整个大流行期间服务机会和家长满意度的纵向研究。
