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使用家长-治疗师合作调查问卷来了解家长对于改善家长参与残疾儿童学校治疗的需求。

Perceived Parent Needs for Improving Parent Participation in School-Based Therapies for Children with Disabilities Using the Parent-Therapist Partnership Survey.

作者信息

Murphy Ashley N, Moskowitz Kathleen, Fernandez Francesca, Risser Heather J

机构信息

Psychiatry and Behavioral Sciences, Northwestern University Feinberg School of Medicine, 710 N. Lake Shore Drive, Suite 1200, Chicago, IL, 60611, USA.

出版信息

J Autism Dev Disord. 2025 Apr;55(4):1254-1273. doi: 10.1007/s10803-024-06282-w. Epub 2024 Feb 23.

Abstract

Rehabilitative and habilitative therapies can help children with disabilities increase independence and overall wellbeing. However, children and their caregivers face many barriers to accessing these therapies and often rely on the school for therapy access. Given the limited resources available within the special education system, increasing parent involvement in special education therapies could improve service delivery. However, providers must first understand what parents need to participate in therapies before attempting to engage families. 217 parents completed an online survey consisting of the Parent-Therapist Partnership Survey and demographic questionnaires about theirfamiliesand their child[ren] with disabilities. The percentage of needs parents endorsed as important and thepercentageofimportantneedsendorsedasunmetwere calculated. Differences across demographic variables were assessed. Overall, parents reported an average of 75% of needs as important with significantly more needs endorsed as important regarding being an informed, engaged member of the child's care team (M = 83%) than needs related to support and guidance (M = 65%, p < 0.001). Furthermore, parentsreportedan average of 58% of important needs as unmet, with no significant differences in subscale averages. Significant associations were found for race/ethnicity, education, income, partner availability, number of children with disabilities in the household, transportation access, neighborhood opportunities, parent efficacy and social, emotional, and behavioral concerns. Parents reported a high percentage of needs as important, but a large percentage of these important needs were considered unmet. Significant disparities based on racial/ethnic identities and access to resources were found. In order to successfully engage parents in special education therapy activities, providers must work to understand and address parents' engagement needs, paying special attention to each family's unique circumstances to optimize engagement.

摘要

康复治疗和 habilitative 疗法可以帮助残疾儿童提高独立性和整体幸福感。然而,儿童及其照顾者在获得这些疗法方面面临许多障碍,并且常常依赖学校来获得治疗。鉴于特殊教育系统内可用资源有限,增加家长对特殊教育疗法的参与可以改善服务提供。然而,提供者在尝试让家庭参与之前,必须首先了解家长参与治疗需要什么。217 名家长完成了一项在线调查,该调查包括家长 - 治疗师合作关系调查以及关于他们的家庭和残疾子女的人口统计问卷。计算了家长认可为重要的需求百分比以及被认可为未满足的重要需求百分比。评估了不同人口统计变量之间的差异。总体而言,家长报告平均 75% 的需求为重要需求,其中作为孩子护理团队中明智、积极参与的成员的需求被认可为重要的比例(M = 83%)显著高于与支持和指导相关的需求(M = 65%,p < 0.001)。此外,家长报告平均 58% 的重要需求未得到满足,各子量表平均值无显著差异。在种族/族裔、教育程度、收入、伴侣情况、家庭中残疾子女数量、交通便利性、社区机会、家长效能以及社会、情感和行为问题方面发现了显著关联。家长报告高比例的需求为重要需求,但这些重要需求中有很大比例被认为未得到满足。发现了基于种族/族裔身份和资源获取的显著差异。为了成功让家长参与特殊教育治疗活动,提供者必须努力理解并满足家长的参与需求,特别关注每个家庭的独特情况以优化参与度。

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