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心脏移植后的疲劳 - 自我效能的一个潜在障碍。

Fatigue after heart transplantation - a possible barrier to self-efficacy.

机构信息

Department of Health Sciences at Lund University, Lund, Sweden.

The Transplant Centre, Sahlgrenska University Hospital, Gothenburg, Sweden.

出版信息

Scand J Caring Sci. 2021 Dec;35(4):1301-1308. doi: 10.1111/scs.12951. Epub 2020 Dec 28.

DOI:10.1111/scs.12951
PMID:33369757
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9291191/
Abstract

RATIONALE

Recovery after heart transplantation is challenging and many heart recipients struggle with various transplant-related symptoms, side-effects of immunosuppressive medications and mental challenges. Fatigue has been reported to be one of the most common and distressing symptoms after heart transplantation and might therefore constitute a barrier to self-efficacy, which acts as a moderator of self-management.

AIM

To explore the prevalence of fatigue and its relationship to self-efficacy among heart recipients 1-5 years after transplantation.

RESEARCH METHOD

An explorative cross-sectional design, including 79 heart recipients due for follow-up 1-5 years after transplantation. Three different self-assessment instruments were employed; The Multidimensional Fatigue Inventory-19, Self-efficacy for managing chronic disease 6-Item Scale and The Postoperative Recovery Profile.

ETHICAL APPROVAL

The study was approved by the Regional Ethics Board of Lund (Dnr. 2014/670-14/10) with supplementary approval from the Swedish Ethical Review Authority (Dnr. 2019-02769).

RESULTS

The reported levels of fatigue for the whole group were moderate in all dimensions of the Multidimensional Fatigue Inventory-19, with highest ratings in the General Fatigue sub-scale. Those most fatigued were the groups younger than 50 years; pretransplant treatment with Mechanical Circulatory Support; not recovered or had not returned to work. Self-efficacy was associated with the sub-dimensions Mental Fatigue (ρ = -0·.649) and Reduced Motivation (ρ = -0·617), which explained 40·1% of the variance when controlled for age and gender.

STUDY LIMITATIONS

The small sample size constitutes a limitation.

CONCLUSIONS

The moderate levels of fatigue reported indicate that it is not a widespread problem. However, for those suffering from severe fatigue it is a troublesome symptom that affects the recovery process and their ability to return to work. Efforts should be made to identify those troubled by fatigue to enable sufficient self-management support.

摘要

背景

心脏移植后的恢复具有挑战性,许多心脏接受者在各种与移植相关的症状、免疫抑制药物的副作用和精神挑战方面挣扎。疲劳据报道是心脏移植后最常见和最痛苦的症状之一,因此可能成为自我效能的障碍,而自我效能是自我管理的调节因素。

目的

探讨心脏移植后 1-5 年患者的疲劳发生率及其与自我效能的关系。

研究方法

采用探索性横断面设计,纳入 79 名心脏移植后 1-5 年随访的患者。采用三种不同的自我评估工具;多维疲劳量表-19 项、慢性疾病管理自我效能 6 项量表和术后恢复概况。

伦理批准

该研究得到了隆德地区伦理委员会的批准(编号 2014/670-14/10),并得到了瑞典伦理审查局的补充批准(编号 2019-02769)。

结果

整个组的疲劳报告水平在多维疲劳量表-19 的所有维度均为中度,在一般疲劳子量表中评分最高。最疲劳的人群是年龄小于 50 岁的人群;移植前接受机械循环支持治疗;未康复或未返回工作岗位。自我效能与心理疲劳(ρ=-.649)和降低的动力(ρ=-.617)的子维度相关,当控制年龄和性别时,解释了 40.1%的方差。

研究局限性

样本量小是一个限制。

结论

报告的中度疲劳水平表明这不是一个普遍的问题。然而,对于那些患有严重疲劳的患者来说,这是一个麻烦的症状,会影响他们的恢复过程和重返工作岗位的能力。应该努力识别那些受疲劳困扰的患者,以便提供足够的自我管理支持。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a102/9291191/d04fe8d2112a/SCS-35-1301-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a102/9291191/d04fe8d2112a/SCS-35-1301-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a102/9291191/d04fe8d2112a/SCS-35-1301-g001.jpg

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本文引用的文献

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Eur J Cardiovasc Nurs. 2021 Jan 1;20(1):34-39. doi: 10.1177/1474515120927121.
2
Chronic pain 1-5 years after heart transplantation-A nationwide cross-sectional cohort study.心脏移植术后1至5年的慢性疼痛——一项全国性横断面队列研究。
Nurs Open. 2020 Apr 27;7(4):1146-1156. doi: 10.1002/nop2.489. eCollection 2020 Jul.
3
Evaluating the feasibility of a nurse-led self-management support intervention for kidney transplant recipients: a pilot study.
评估由护士主导的肾移植受者自我管理支持干预措施的可行性:一项试点研究。
BMC Nephrol. 2019 Apr 27;20(1):143. doi: 10.1186/s12882-019-1300-7.
4
Developing a Grounded Theory on Adaptation After Lung Transplantation From Intermediate-Term Patient Experiences.基于中期患者经历构建肺移植后适应的扎根理论
Prog Transplant. 2019 Jun;29(2):135-143. doi: 10.1177/1526924819835823. Epub 2019 Mar 26.
5
Fatigue and weakness hinder patient social reintegration after liver transplantation.疲劳和虚弱会阻碍肝移植后患者的社会再融入。
Clin Mol Hepatol. 2018 Dec;24(4):402-408. doi: 10.3350/cmh.2018.0028. Epub 2018 Oct 8.
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The life and death construct in heart transplant patients.心脏移植患者的生死观念
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