Son Heesook, Kang Youngmi
Red Cross College of Nursing, Chung-Ang University, Seoul 06974, Korea.
East-West Nursing Research Institute, College of Nursing Science, Kyung Hee University, Seoul 02447, Korea.
Healthcare (Basel). 2020 Dec 27;9(1):21. doi: 10.3390/healthcare9010021.
Despite the adverse effects of negative coping after receiving a stoma, there is a lack of information on how patients cope with ostomies and on their families' experiences throughout the coping process. We aimed to explore the coping experiences of individuals with ostomies throughout their illness, applying the Corbin and Strauss Chronic Illness Trajectory Framework, using exploratory qualitative methods involving focus group interviews. Purposive sampling was utilized to recruit 19 participants (split across three groups) through an ostomy association in South Korea. Two focus group interviews were separately conducted from March through to May 2017 until data saturation was achieved. Using qualitative content analysis, we analyzed the transcribed interviews and identified words and themes to interpret the results. The coping experiences of patients with ostomies were expressed through three interrelated themes: struggling and suffering, learning how to live with ostomy, and living with ostomy. We found gender differences in spousal support and a struggle among older patients regarding social coping. The themes identified suggest that gender should be considered when designing interventions to help patients cope with ostomies.
尽管造口术后消极应对存在不良影响，但对于患者如何应对造口以及其家人在整个应对过程中的经历，仍缺乏相关信息。我们旨在运用科尔宾和施特劳斯慢性病轨迹框架，采用包括焦点小组访谈在内的探索性定性方法，探究造口患者在患病过程中的应对经历。通过韩国的一个造口协会，采用目的抽样法招募了19名参与者（分为三组）。从2017年3月至5月分别进行了两次焦点小组访谈，直至达到数据饱和。我们运用定性内容分析法，对转录的访谈进行分析，并确定词语和主题以解读结果。造口患者的应对经历通过三个相互关联的主题得以体现：挣扎与痛苦、学习如何与造口共处、带着造口生活。我们发现配偶支持方面存在性别差异，且老年患者在社会应对方面存在挣扎。所确定的主题表明，在设计帮助患者应对造口的干预措施时应考虑性别因素。
