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脊髓损伤患者对幸福感干预措施的体验和看法:定性研究的系统评价。

The experience and perspective of people with spinal cord injury about well-being interventions: a systematic review of qualitative studies.

机构信息

Occupational Therapy, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia.

Centre for Disability Research, The University of Sydney, Sydney, Australia.

出版信息

Disabil Rehabil. 2022 Jul;44(14):3349-3363. doi: 10.1080/09638288.2020.1864668. Epub 2020 Dec 30.

DOI:10.1080/09638288.2020.1864668
PMID:33377801
Abstract

PURPOSE

Promoting well-being is a key aim of rehabilitation. The intentional design of interventions to address well-being requires an understanding of the factors that affect this complex phenomenon. A growing body of qualitative literature has identified determinants that people with SCI report affect their well-being. It is unclear whether or how rehabilitation interventions can influence these well-being determinants. This study sought to explore the experience and perspective of people with SCI about interventions that target their well-being.

METHOD

Systematic search of seven databases. Deductive analysis to categorize findings related to well-being determinants, and further inductive coding to identify sub-themes, relationships and additional findings.

RESULTS

Twenty studies were selected, involving a wide range of interventions. Each intervention influenced a number of well-being determinants, which were inter-related. People with SCI reported improvements in both subjective and psychological well-being. However, well-being was not always well defined in the studies and people with SCI reported lack of priority for, and opportunity to engage in, well-being interventions in the current rehabilitation system.

CONCLUSIONS

Rehabilitation interventions can influence well-being determinants. These determinants form a useful framework for the intentional design of well-being interventions, which should be informed by a broad understanding of well-being.IMPLICATIONS FOR REHABILITATIONWell-being can be influenced by rehabilitation interventions, and a more explicit focus on well-being in intervention design and evaluation is recommended.Conceptual frameworks used to define and measure well-being should adopt a broad understanding of well-being.Well-being interventions should address the determinants identified by people with SCI (engaging in occupation, responsibility, values and perspectives, self-worth, self-continuity, relationships and the environment).People with SCI want a greater priority placed on well-being interventions, and more opportunities to engage in these interventions, especially in the community.

摘要

目的

促进幸福感是康复的主要目标。为了实现幸福感,需要了解影响这一复杂现象的因素,有针对性地设计干预措施。越来越多的定性文献已经确定了影响脊髓损伤患者幸福感的决定因素。目前尚不清楚康复干预措施是否可以影响这些幸福感决定因素,以及如何影响。本研究旨在探讨脊髓损伤患者对针对其幸福感的干预措施的体验和看法。

方法

对七个数据库进行系统检索。对与幸福感决定因素相关的发现进行演绎分析,进行分类,并进一步进行归纳编码,以确定亚主题、关系和其他发现。

结果

共选择了 20 项研究,涉及广泛的干预措施。每项干预措施都影响了一系列相互关联的幸福感决定因素。脊髓损伤患者报告在主观幸福感和心理幸福感方面都有所改善。然而,在研究中,幸福感并没有得到很好的定义,而且脊髓损伤患者报告说,在当前的康复系统中,他们对幸福感干预措施缺乏重视和机会。

结论

康复干预措施可以影响幸福感决定因素。这些决定因素为幸福感干预措施的有针对性设计提供了一个有用的框架,应该通过对幸福感的广泛理解来提供信息。

对康复的意义

康复干预措施可以影响幸福感决定因素,建议在干预设计和评估中更加明确地关注幸福感。用于定义和衡量幸福感的概念框架应采用对幸福感的广泛理解。幸福感干预措施应针对脊髓损伤患者确定的决定因素(参与职业、责任、价值观和观点、自我价值、自我连续性、人际关系和环境)。脊髓损伤患者希望更加重视幸福感干预措施,并获得更多参与这些干预措施的机会,特别是在社区中。

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