Occupational Therapy, Faculty of Medicine and Health, The University of Sydney, Sydney, Australia.
Centre for Disability Research, The University of Sydney, Sydney, Australia.
Int J Qual Stud Health Well-being. 2021 Dec;16(1):1986922. doi: 10.1080/17482631.2021.1986922.
Well-being after spinal cord injury is affected by a range of factors, many of which are within the influence of rehabilitation services. Although improving well-being is a key aim of rehabilitation, the literature does not provide a clear path to service providers who seek to improve well-being. This study aimed to inform service design by identifying the experience and perspective of people with SCI about interventions targeting their well-being.
The scoping review of qualitative literature used thematic analysis to identify and categorize themes related to service activities, valued aspects, limitations and perceived outcomes.
Thirty-eight studies were selected, related to a range of service types. Most studies did not adopt a well-being conceptual framework to design and evaluate the services. People with SCI particularly valued being treated with dignity, positive expectations, increased autonomy and peer support. Improvements to well-being were reported, including many years post-SCI. However, people with SCI reported limited opportunities to engage in such services.
Rehabilitation services can improve well-being across the lifetime of people with SCI, but gaps in service provision are reported. The review identified valued aspects of services that may inform service design, including staff approach and positive expectations, having own skills and worth valued, peer support and interaction, autonomy in valued occupations, and long-term opportunities for gains.
脊髓损伤后的幸福感受到多种因素的影响，其中许多因素都受到康复服务的影响。尽管提高幸福感是康复的主要目标，但文献并没有为寻求提高幸福感的服务提供者提供明确的途径。本研究旨在通过确定脊髓损伤患者对针对其幸福感的干预措施的体验和观点，为服务设计提供信息。
对定性文献的范围综述采用主题分析来识别和分类与服务活动、有价值的方面、局限性和感知结果相关的主题。
选择了 38 项研究，涉及多种服务类型。大多数研究没有采用幸福感概念框架来设计和评估服务。脊髓损伤患者特别重视受到尊重、积极的期望、增加自主权和同伴支持。据报道，幸福感得到了改善，包括在脊髓损伤后多年。然而，脊髓损伤患者报告说，他们获得此类服务的机会有限。
康复服务可以改善脊髓损伤患者一生中的幸福感，但报告称服务提供存在差距。该综述确定了服务的有价值方面，这些方面可能为服务设计提供信息，包括员工的方法和积极的期望、拥有自己的技能和价值、同伴支持和互动、有价值的职业自主权以及长期获得机会。
