Public Health Nursing Department, Izmir Katip Celebi University, Izmir, Turkey.
Soc Work Public Health. 2021 Feb 17;36(2):300-310. doi: 10.1080/19371918.2020.1859034. Epub 2020 Dec 30.
Chronic diseases are a priority for health-care systems and patient-centered care. They cause long-term issues and have a number of physical, psychological, and social effects. Patients with chronic diseases require ongoing care and support in order to manage them. The aim of this study was to understand the experiences of patients with chronic conditions who were able to practice self-management. The study was conducted in Izmir province, Turkey with 10 patients with a chronic disease (e.g., hypertension, diabetes, arthritis) who attended two family health-care centers. A phenomenological approach was used and three main themes were identified: social support, disease management, and self-awareness and empowerment. It was determined that the subthemes of "definition of a chronic disease," "perceived barriers," "emotional and spiritual state," "self-monitoring," and "diet and medication management" had a significant influence on self-management. The results demonstrated that patients' health outcomes can be affected by their experiences and behaviors. Health-care professionals should design and implement self-care programs that take into account all the variables that affect patients' self-management of their disease.
慢性病是医疗保健系统和以患者为中心的护理的重点。它们会导致长期问题，并对身体、心理和社会产生多种影响。慢性病患者需要持续的护理和支持才能进行管理。本研究旨在了解能够进行自我管理的慢性病患者的体验。该研究在土耳其伊兹密尔省进行，共有 10 名患有慢性病（如高血压、糖尿病、关节炎）的患者参加了两个家庭医疗保健中心。采用现象学方法，确定了三个主要主题：社会支持、疾病管理以及自我意识和赋权。研究确定了“慢性病的定义”、“感知障碍”、“情绪和精神状态”、“自我监测”和“饮食和药物管理”等子主题对自我管理有重大影响。研究结果表明，患者的健康结果可能受到其经历和行为的影响。医疗保健专业人员应设计和实施自我护理计划，考虑影响患者疾病自我管理的所有变量。
